NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


Stories of NF: Andrew D.

Apr 27, 2017, Posted in NF Hero, NF1

At Andrew's three year checkup, his pediatrician noticed the presence of multiple café au lait spots on Andrew's body. He referred us to a genetic specialist for further investigation. He also printed out some general information about NF. The specialist clinically diagnosed Andrew with NF type 1, and a genetic work-up confirmed the initial diagnosis. The original diagnosis was on October 27, 2016.

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National Volunteer Week 2017

Apr 24, 2017, Posted in Community, Latest News

Volunteers are a driving force behind the Children’s Tumor Foundation. In both big ways and small, you can get involved to make a difference in the lives of those living with NF.  National Volunteer Week is an opportunity to show gratitude and to recognize the CTF volunteers, who donate their time, talent, voice and support to the NF cause in their communities.

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Save the date: 2018 NF Conference in Paris, France

Apr 20, 2017, Posted in Collaborations, NF Conference, Science

Mark your calendar: the 2018 NF Conference will be taking place November 2-6, 2018 at the Maison de la Chimie in Paris, France.  As details become available, they will be posted at

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NTAP Call for RFAs: Cutaneous Neurofibromas

Apr 20, 2017, Posted in Collaborations, NF1, Outside Opportunities, Science

Neurofibromatosis Therapeutic Acceleration Program (NTAP) is launching a new research program focused on understanding the pathogenesis of cutaneous neurofibromas. NTAP is a philanthropic research entity based at Johns Hopkins University dedicated to the discovery of therapeutics for the peripheral nerve tumors that afflict people with neurofibromatosis type 1 (NF1). Cutaneous neurofibromas represent a major unmet need for NF1 patients. This research program sets the blueprint for improving therapeutics for these tumors by encouraging research proposals that improve the Understanding of Cutaneous Neurofibromas

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