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Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.

  

Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News

Reflections on NF Forum from First-Time Participants

Jun 15, 2018, Posted in Community, Latest News, NF Forum, NF2, Schwannomatosis

In May 2018, the NF community gathered in Atlanta, GA for a long weekend of patient engagement training, leadership training, research updates, and patient and family support.  We asked two first-time attendees to reflect on their experience.

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House Appropriations Committee Advances $15 Million For NF Research

Jun 13, 2018, Posted in Advocacy, Latest News

Today, the U.S. House of Representatives Committee on Appropriations approved the FY 2019 Department of Defense Appropriations Bill, which includes $15 million in funding for Neurofibromatosis (NF) research. 

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NF Conference abstract submission deadline extended to June 25

Jun 13, 2018, Posted in NF Conference

The Joint Global Neurofibromoatosis Conference is a global event attracting more than 800 participants worldwide across a wide range of scientific disciplines, from research and clinical backgrounds, all focused on improving outcomes for patients with neurofibromatosis type 1 (NF1), neurofibromatosis type 2 (NF2) and schwannomatosis

The call for abstracts has been extended to June 25. Click here for more information. 

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Synodos for NF2 Consortium Publishes Key Results of its Work

Jun 13, 2018, Posted in Latest News, NF2, Press Release, Science, Synodos

Study Shows that Drug Combination Therapies Effective in Treating Schwannomas and Meningiomas

The Synodos for NF2 consortium of the Children’s Tumor Foundation (CTF) today published its first set of results and released its second set of data in the leading scientific journal PLOS ONE

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