NF affects
1 in every
3,000 people

Our vision is to end NF

The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community.


Research for a cure

Since its formation, the Children’s Tumor Foundation has been crucial to the development of solid scientific data about the genetic disorder neurofibromatosis (NF). Thanks to the generosity of our donors and supporters, we are breaking through barriers and forging the pathway that will lead to a cure.

Get to know our NF Heroes

Latest News


From Process to Progress: Children’s Tumor Foundation Annual Report

Jun 22, 2017, Posted in Latest News

We’re proud to announce that our latest annual report – titled From Process to Progress – is now available to read online.  Outlining the Foundation’s activities over the past year, from research to awareness to patient support, the annual report highlights a vibrant NF community that is making great progress in the fight to end NF.  Additionally, the financial pages offer transparency on how funds are spent, earning the Foundation a four-star rating from Charity Navigator once again.  And of course, none of this is possible without the support of all of you – the thousands of donors who give to ensure that NF research and programs continue.

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CTF President and Chief Scientific Officer Annette Bakker Wins 2017 RARE Champion of Hope Award

Jul 20, 2017, Posted in Awards, CTF in the News, Latest News, Science

We are thrilled to announce that Children’s Tumor Foundation President and Chief Scientific Officer Annette Bakker, PhD, has been announced as a recipient of a 2017 RARE Champion of Hope award.

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Stories of NF: Keirsten W.

Jul 19, 2017, Posted in NF Hero, NF1

Keirsten is a nine year old girl who loves her family and friends. She was diagnosed with NF1 at birth. She had many of the signs and symptoms: multiple café au lait spots, neurofibromas on the skin, freckling under her arm and groin area, a tumor behind the left eye (optic glioma), skin defects, and short bones.

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Links to CTF Regional Pages and Breaking NF News

Jul 12, 2017, Posted in Awareness, Community, Latest News

The Children's Tumor Foundation has loads of amazing events taking place in cities across the country! A great way to find out what's happening in your neck of the woods is to follow one of our regional Facebook pages!

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