Board of Directors
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Board of Directors FAQs
below is are the community relations FAQs just as a placeholder to one one type of formatting possibility.
How does The Foundation help with Event Registration?
How do I host an Event for the Foundation?
Can The Foundation staff my event?
Can I obtain a list of all my guests and donations?
How can the Foundation help with event promotion?
Will the Foundation reimburse me for my expenses?
Can I sign contracts for my event?
How do I organize a Host Committee?
Can I participate in more than one National Program? If so, what are they?
How do I obtain insurance for my event?
The Benefite New York Thursday, October 30, 2014 6:30 p.m.
The Benefti II Detriot Saturday, November 22, 2014 6:30 p.m.
Winter Board Meeting February - Date To Be Decided , Venue Atlanta
April 17-19, 2015 NF Forum
Summer Board Meeting June 6, 2015
June 6-9 NF Conference Portola Hotel and Spa Monterey CA.
For more information contact:
Linda Halliday Martin
New Rochelle, New York
Linda Martin is a Partner in the Litigation Department of Simpson Thacher & Bartlett LLP in New York City, with extensive experience resolving commercial conflicts in a broad range of industries and practice areas for her Fortune 500 clients through litigation, arbitration, and negotiation. Her clients are global in scope, and she has represented and advised them in all stages of business dispute resolution, both within the United States and across international borders.
Ms. Martin has been a member of the Board of Directors of the Children's Tumor Foundation since 2007. She was elected Chairperson in 2014. Prior to that time, she served as Vice Chairperson (2012-2014) and Secretary (2008-2012) of the Board, and as chairperson of the Foundation’s Legal Affairs and Ethics Committee (2008-2014).
Annette Bakker, PhD
President and Chief Scientific Officer
New York, NY
Annette Bakker, the Children's Tumor Foundation's President and Chief Scientific Officer, holds a PhD in cell biology from the University of Antwerp. Her past experience includes serving as Oncology Group Leader at Janssen Pharmaceutica, and postdoctoral fellowships at Yale University and La Salpetriere, Paris.
Colin Bryar began his career at Oracle Corporation designing and building software. After leaving Oracle in 1996, he co-founded Server Technologies Group to build e-commerce software for the, then nascent, World Wide Web. Later, the company was acquired by Amazon.com.
With Amazon.com, Mr. Bryar has spent the last twelve years in a number of technology leadership roles.
Rachel B. Tiven
New York, New York
Rachel B. Tiven is the Executive Director of Immigration Equality, a national non-profit organization fighting for equal rights for lesbian, gay, bisexual, transgender and HIV-positive immigrants and their families, and winning asylum in the U.S. for those fleeing persecution due to sexual orientation, gender identity, or HIV status. Under her leadership, Immigration Equality has tripled its staff and budget, quadrupled client services, created the Immigration Equality Action Fund, its lobbying arm, and opened an office in Washington, D.C. Ms. Tiven
Irvington, New York
Mr. Fuchs has been the General Partner for Fertilemind Capital since he founded the firm in 1999. The firm is one of the few capital allocators that invest throughout the natural life cycle of any commercial venture.
Lake Norman, North Carolina
Tracy Galloway graduated from the University of South Carolina in 1987 with a dual major in Finance and Statistics. Her career has involved marketing support for engineering firms, financial institutions, and Galloway Promotions, Inc., her husband, Mark’s, family company.
In 1997, the Galloway's sold Smilemakers Inc., another family firm, and moved to Lake Norman, North Carolina. where they raised their two children, Mitchell (24), a recent corp graduate of Virginia Polytechnic Institute and now a 2d Lt in the Air Force and and McKinnon (21), who attends the University of North Carolina at Charlotte. During this time, Tracy became very involved with several charitable organizations with the majority of her time being devoted to their children's school, Cannon, where she served on several committees including fundraising and capital campaigns.
Bruce R. Korf, MD, PhD
Chairperson of the Medical Advisory Committee
Bruce R. Korf, MD, PhD, is one of the leading clinical experts and clinical researchers in the field of neurofibromatosis (NF) and has worked with the Foundation for over 25 years. He has served as Chair of the Foundation's Clinical Care Advisory Board and as Chair of the Foundation's Medical Policy Committee. He currently serves as Chair of the Medical Advisory Committee and as a member of the Board of Directors of the Foundation.
Stuart Match Suna
New York, New York
Stuart Match Suna, is co-owner and President of Silvercup Studios, the Northeast's largest independent, full-service film/television production facility. Silvercup is currently home to such popular TV series as Girls, Person of Interest, Elementary, White Collar and the highly anticipated The Michael J. Fox Show. Other well-known productions filmed at the studios include 30 Rock, Gossip Girls, Sex and the City, The Sopranos, The Devil Wears Prada and When Harry Met Sally, plus hundreds of commercials annually.
Chapter Council President
Jill Markland has served as the President of the Children’s Tumor Foundation's Indiana Chapter since 2007. In addition, she has served as the national Chapter Council Secretary for four years. Professionally, Jill has worked for Procter & Gamble for 15 years where she coordinates global training and events along with managing multiple internal use websites and newsletters in the area of Corporate Research & Development Innovation Capability. Jill and her husband, Rodney, have their own real estate business including a 21 unit apartment complex that they manage together as well. Jill spent four years volunteering for her community sorority, Tri-Kappa, where they raised money for local organizations, and is active in her church. Jill began volunteering with the Children’s Tumor Foundation when her son, Jesse, was diagnosed with NF1.
Allan E. Rubenstein, MD
Director of Medical Affairs Emeritus
New York, New York
Allan E. Rubenstein, M.D., one of the Foundation's co-founders, assumed emeritus status on May 1, 2003 after having served the Foundation as its director of medical affairs for 25 years. During that period he provided invaluable guidance and leadership in the development of the organization, with dramatic impact on it's medical and research programs. His efforts have been a key element in the broader understanding of neurofibromatosis in the medical community. His insights have been, and continue to be, a significant catalyst in the remarkable achievements and successes that have characterized NF research sponsored by the Foundation and elsewhere.
Daniel T. Altman
Jericho, New York
Daniel T. Altman is a Partner at Belkin Burden Wenig & Goldman, LLP, an approximately 50 attorney real estate boutique law firm located on Madison Avenue in New York City. As Chair of the firm’s Transactional Department, he is a leading practitioner of transactional real estate law and has extensive experience in leasing, conveyancing, financing and cooperative and condominium matters. Mr. Altman has drafted and negotiated store, office, retail, restaurant, triple net, ground, telecommunications and loft leases on behalf of both owners and tenants, covering hundreds of thousands of square feet of leased space in office buildings, malls, strip centers and residential and commercial buildings. Mr. Altman also
Laura Ganio Bona
Pelham Manor, New York
Laura Ganio Bona has dedicated her time, on a pro bono basis, to numerous charities and not-for-profits for over twenty five years. Currently, she is an active fundraiser for the Development Office at Fairfield University in Connecticut and is Chair of the Parents’ Committee for Annual Giving.
Ms. Bona has served as Executive Director of The Pelham Education Foundation and as a member of its Board of Directors. She is a past Trustee of the Bartow-Pell Mansion Museum in New York City and a past Treasurer of the Bartow-Pell Conservancy.
William G. Brooks, P.E.
William G. "Bill" Brooks is Vice President for HNTB, a transportation consulting firm. For over 30 years, he has worked as a transportation consultant on a wide range of airport, roadway, transit, and municipal infrastructure projects. He has served as Mayor of the city of Belle Isle, FL since 2001. He currently serves as Chairman/President of The Cornerstone Academy, a K-12 charter school with over 1300 students and a curriculum focus on life sciences and biotechnology, Immediate Past President and Board member of the Florida League of Mayors, and is a member of the National League of Cities Advisory Council, the Nemours Council, and the Tiger Bay Club. A native of Frankfort, KY, he is a graduate of the University of Alabama with a B.S. in Civil Engineering. He and his wife have three children.
St. Petersburg, Florida
Suzanne Earle is Owner and Vice President of Earle and Associates, a family owned real estate appraisal and brokerage firm in St. Petersburg, Florida since 1981.
Ms. Earle has been a member of the Board of Directors of the Children’s Tumor Foundation since 2001. She also chairs the Medical Liaison Committee and serves on the Executive and Leadership Development Committees. Past positions held with the Foundation include President, Florida Chapter 2001-2005; President, Chapter and Affiliate Council 2001-2005; Secretary, Board of Directors of the Children’s Tumor Foundation 2004-2006; and Chairperson, Board of Directors of the Children’s Tumor Foundation 2006-2010.
Dan Gilbert is Founder and Chairman of Rock Ventures LLC, the umbrella entity for his investments and real estate, and Quicken Loans Inc., the nation's largest online home lender and third largest retail lender. Dan is also majority owner of the NBA's Cleveland Cavaliers and operator of the Quicken Loans Arena ("The Q") in Cleveland, Ohio.
John Golfinos, MD
New York, New York
Dr. Golfinos, a native New Yorker, completed medical school at the College of Physicians and Surgeons of Columbia University. He then trained in neurosurgery at the Barrow Neurological Institute in Phoenix, AZ with Dr. Robert F. Spetzler. He joined the faculty at NYU in 1995 and has a practice devoted solely to the multi-modality treatment of brain tumors, including primary brain tumors, metastatic tumors, acoustic neuromas and skull base tumors.
Matt is a married father of three who works in sales and marketing at News America Marketing, a single source marketing solutions company owned by News Corporation. He was diagnosed with NF2 during his sophomore year at Indiana University. As a result, over the last 15 years, Matt has dealt with deafness, facial paralysis, vision problems, and balance issues, as well as long recoveries from a spinal surgery, two brain surgeries, and six eye surgeries.
Holmdel, New Jersey
John McCarthy works in the structured finance division of Standard & Poor's where he specializes in structured credit products. He has worked in products across the asset-backed securities, asset-backed commercial paper, collateralized debt obligations, and structured credit businesses since 2000. His primary area of focus is in credit derivatives, other derivative products, such as interest rate and currency swaps, and esoteric securitization products such as timeshare, shipping container, aircraft, stranded cost, catastrophe bond, agricultural commodity, and small business loan securitizations in addition to collateralized loan obligations.
Los Angeles, California
Steve McKenzie is the founder and managing partner of Channel West Group, a boutique real estate investment and advisory firm based in Malibu, California. Channel West focuses on commercial property investments in the Hawaii and West Coast markets with an emphasis on hotel and resort properties. Currently, the firm has equity interests in assets located in Los Angeles, Palm Springs, and Honolulu.
Lesley Oslica has served as the Arkansas Chapter President of the Children’s Tumor Foundation since 2005. In addition, she has served as the national Chapter Council Secretary and Vice Chair for five years. Previously, Mrs. Oslica worked in the investment banking industry for eleven years. She began volunteering with the Children’s Tumor Foundation when she learned that her daughter had NF1.
Glen Cove, New York
Laura Perfetti has been teaching fourth grade for the Syosset Central School District since 1998. Previously she taught second grade for two years in Bushwick, Brooklyn. In addition, she implemented and is the chairperson of P.R.I.D.E., an elementary school character education program. Mrs. Perfetti won the Jenkins Award in 2012 in recognition of her leadership, efforts, and dedication to her school, as well as her work on P.R.I.D.E. Mrs. Perfetti also developed a curriculum in collaboration with other teachers and parents that is used as a model throughout her school district.
Kenneth C. Rudd
New York, NY
Ken is of counsel to the law firm of Zeichner Ellman & Krause LLP in New York City. His law practice focuses on commercial and business litigation, particularly in the financial services area and internal corporate investigations, with an emphasis on anti-money laundering (AML) compliance.
Bob has served as the President/CEO of IMS (Integrated Marketing Solutions, Ltd) – a business consulting/marketing services organization – since 1998. He has been a consultant and speaker on integrated marketing communications, marketing measurment, incentives and brand management. Prior corporate experience includes multiple sales and marketing positions at General Motors Corporation (18 Years – Oldsmobile/OnStar/GM Corporate). His responsibilities included marketing, national sales promotion, national merchandising, field sales, field marketing and dealer operations.
New York, NY
Mr. Stanicky currently serves as Managing Director, Global Equity Research at RBC Capital Markets, focusing on the specialty pharmaceuticals sector and has spent almost 15 years in equity research covering healthcare stocks. He previously served in senior roles at Goldman Sachs and Canaccord Genuity.
Edward M. Stern
Pro Bono Counsel
Ed Stern is a private practice attorney in Newtonville, MA. A sole practitioner in association with seven other attorneys, his practice includes representation of major business interests in the public and private sectors, as well as administrative agency and court room representation. Other areas of practice include criminal, juvenile, corporate organization, real property, estate planning, and civil representation.
David Viskochil, MD, PhD
Salt Lake City, Utah
David Viskochil, MD, PhD, is professor of pediatrics and director of clinical services in the Division of Medical Genetics.
He received his bachelor’s degree in biology from the University of Arizona, and his doctorate in biochemistry and medical degree from the University of North Carolina in 1985. He completed his pediatric residency and clinical genetics fellowship at the University of Utah Affiliated Hospitals.
Nate Walker is President of Investors Management Company, Inc, a firm specializing in the property management of multi-family living communities in North and West Los Angeles. Since 1984, Mr. Walker, along with his family, has been involved in various aspects of real estate investments and finance.
Mr. Walker has been involved with the Children’s Tumor Foundation and its predecessor, The National Neurofibromatosis Foundation, since 1986.
Margaret (Peggy) Wallace, PhD
Dr. Wallace is a professor of molecular genetics and microbiology at the University of Florida, where her laboratory performs research in NF1 and related conditions. She has been the Chair of the Children’s Tumor Foundation's Research Advisory Board since 2004, directing the Young Investigator Award grant program which provides scientists with two years of salary support plus a travel stipend to attend the NF Conference and other meetings. She is also a non-voting member of the Children'sTumor Foundation Board of Directors, since 2005, and is Chair of the recently formed BioBank Committee.
Mayfield Heights, Ohio
Richard Horvitz is Chairman of Moreland Management Company, a closely-held private family investment office. An attorney by training, Mr. Horvitz worked at Baker & Hostetler's Cleveland office before joining his family's operating businesses which were later sold in 1987.
He has been a member of the Board of Directors of the Children's Tumor Foundation since 1996 and is currently an Honorary Director.
Michie O’Day is an accomplished artist who lives and paints in Maine. After successful careers in retail management, then non-profit fundraising, she moved to Stonington in 2000 to devote her life to her art. She now resides in Portland.
NF2 runs in her family. Michie was diagnosed with it in 1983 and became a member of CTF in 1984. She served on the CTF Board of Directors from 1999-2005 and returned as an Honorary Board member in 2011. She has also testified before Congress in support of NF funding, served as a consumer peer reviewer on the Army Congressionally Directed Medical Research Program for NF, and has raised money for and donated her work to CTF.
Alan H. Robbins, MD
Alan H. Robbins, M.D. was formerly President and CEO of the New England Baptist Hospital in Boston, a position he held from 1995 to 2002. He continued there as President Emeritus from 2002 to 2003. With over 30 years of experience in the medical profession, Dr. Robbins is an accomplished clinician, researcher, and executive.
Until 1996 he served as Chairman of the Department of Radiology at New England Baptist Hospital, and Chief of Radiology at the Boston VA Medical Center. During that time he also organized, and was the President of The Boston Imaging Group P.C., which operated a highly successful medical imaging center in Brookline, Massachusetts.
Carolyn E. Setlow
Carolyn E. Setlow is an experienced business executive, market researcher, life and executive coach, and not-for-profit volunteer. Until recently, she served as Executive Vice President of GfK Custom Research North America, a member of the GfK Group, one of the five largest market research organizations in the world. She served previously in a senior executive role at the company's predecessor firms, NOP World, RoperASW and Roper Starch Worldwide. In addition, she maintains a small private executive and life coaching practice and serves as a trustee of several not-for-profit organizations, including the Connecticut Community Foundation.