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Living with NF

Learn About NF Neurofibromatosis encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body. In addition, it can affect the development of non-nervous tissues such as bones and skin. Find Support: Find a Local Chapter or Affiliate The Foundation has a presence in nearly all 50 states and facilitates patient support groups, medical symposia, and fund raising events. Learn more about the Chapter or Affiliate in your area. Find a Doctor A list of NF specialists in the United States and abroad. Patient Information In this section we offer patient information in various formats. Participate In Research The number of open clinical trials for neurofibromatosis is growing! For the most current neurofibromatosis clinical trials please visit www.clinicaltrials.gov and enter search term 'neurofibromatosis'. NF Chat Room Click here to visit our Chat room to connect with others with NF. Discussion Boards These forums bring together people from around the world. While they share a connection to NF, people hold many different opinions about religion, politics, music… virtually everything. This is a good thing, and makes for interesting conversations and sharing of views. Please click here and join the community sharing advice and support. NF Forum: Patient and Family Medical Symposium The Children's Tumor Foundation hosts the annual NF Forum: Patient and Family Medical Symposium in cities across the country. This is a wonderful opportunity to learn more about NF research and treatment options as well as build relationships with individuals and families affected by NF. C & A Resources This section of the website is for resources for those volunteers who are part of the leadership of their local chapter or affiliate. Clinical Trials View a list of all current clinical trails. NF Camp Discover how young adults (ages 12-21) can connect with peers who understand what it’s like to live with NF. YouthCONNECT Do you have NF, have a sister or brother with NF, or a friend/relative with NF? Are you between the ages of 10 and 17? Do you want to become involved in the Children's Tumor Foundation? If the answer to the above questions is "yes" then YouthCONNECT is just the place for you!