National Office Staff

	George Orfanakos President ext. 224
Medical & Research Programs
Annette Bakker, Ph.D. Senior Vice President of Research and Drug Development		Min Yi Wong Research Program Director ext. 242
Development & Volunteer Relations
Rick Lepkowski Chief Development Officer ext. 233	John Heropoulos Vice President 617-456-4706 (MA)	Patrice Pancza Development Officer ext. 235
Traceann Adams Director, NF Walk ext. 236	Jill Beck Director, Racing4Research 480-206-2479 (CA)	Sarah Coulam Director, NF Endurance ext. 225
Kelly Mills Regional Manager, Volunteer Relations 310-216-9570 (CA)	Amita Patel Volunteer Relations Coordinator ext. 249	Athina Moustakis Volunteer Relations Coordinator ext. 228
Sarah Ill Executive Assistant ext. 227	Chrissie Connors NF Endurance Coordinator, ext. 251
Public Education & Patient Advocacy
Mary Vetting Communications Associate ext. 252		Chad Leathers Digital Media Manager ext. 232
	Rosa Amelia Perez Project Administrator ext. 226
Finance & Database Management
Tom Malone Chief Financial Officer ext. 233	Sarah Anderson Accountant ext. 239	Fredric Sinclair Database Manager ext. 230
Monique Boucher Database Associate ext. 241

California Office
11601 Wilshire Blvd, Suite 500
Los Angeles, CA 90025
Phone: 310-216-9570

New England Regional Office (MA, RI, NH, ME, VT, Northern CT)
268 Summer Street, LL
Boston, MA 02210
Phone: 617-456-4706
Fax: 617-292-0019

The Foundation has 37 chapters and affiliates throughout the United States:

Alabama, Alaska, Arkansas, California, Colorado, Connecticut, Florida, Georgia, Idaho, Illinois, Iowa, Kansas, Louisiana, Maine, Massachusetts, Michigan, Mid-Atlantic Region, Missouri, New Hampshire, Nevada, New York, New Jersey, Nebraska, North Carolina, Ohio, Oklahoma, Oregon, Pennsylvania, Rhode Island, South Carolina, Tennessee, Utah, Vermont, Washington, Wisconsin, Wyoming.

The National Neurofibromatosis Foundation was founded in 1978 by Allan E. Rubenstein, M.D., Lynne Courtemanche Shapirio R.N., and Joel Hirschtritt, Esq. In January 2005, the Foundation changed its name to the Children's Tumor Foundation.