The Foundation has a presence in nearly all 50 states and facilitates patient support groups, medical symposia, and fund raising events. Learn more about the Chapter or Affiliate in your area.
Below are the Chapter pages for each state where the Foundation has a presence. You can also click the Facebook icon next to your state, 'Like' the page, and then connect with local families and get updates on events in your area!
Volunteer Relations Coordinators' Regions and Contact Information