titleCommunity Relations - The Children's Tumor Foundation - Neurofibromatosis, NF, NF1, NF2, Schwannomatosis <subtitle type="text">The mission of The Children's Tumor Foundation is to encourage and support research and the development of treatments and cures for Neurofibromatosis: NF1, NF2, schwannomatosis and related disorders.</subtitle><link rel="alternate" type="text/html" href="http://www.ctf.org"/><id>http://www.ctf.org/Chapters-Affiliates/New-York/feed/atom.html</id><updated>2015-09-04T12:55:09-04:00</updated><generator>software</generator><link rel="self" type="application/atom+xml" href="http://www.ctf.org/Chapters-Affiliates/New-York/feed/atom.html"/><entry><title>New York Chapter2013-02-23T00:20:34-05:002013-02-23T00:20:34-05:00http://www.ctf.org/New-York/New-York-Chapter.htmlJulie Pjpantoliano@ctf.org<div class="feed-description"><p><span style="font-size: 12pt;"><strong>For more information about CTF and our New York Chapter please contact Julie Pantoliano at 212-344-6633, ext. 8551 or <a href="mailto:jpantoliano@ctf.org">jpantoliano@ctf.org</a>.<br /></strong></span></p> <p>&nbsp;</p> <p><strong><strong><span style="font-size: 26pt; line-height: 115%; color: #1f497d;">Be Heard. Join the NF Registry.</span></strong></strong></p> <p><strong><span style="font-family: 'Tahoma','sans-serif';">The NF Registry is an internet based resource for patients and medical scientists who care about NF. Patients (or their parents/guardians) can contribute their NF experiences to help inform the research community. They can also learn about clinical trials of promising new treatments. The NF Registry currently contains over 2,000 patient records, but it will take even greater numbers of registered patients to push for a better life for those with NF. Why?</span></strong></p> <ul> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To call attention to how many we are – 120,000 in the U.S. alone </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To help understand why NF is so different from person to person </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To show we are a community that will come together to work toward treatments </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To accurately represent each type of symptom seen in NF</span></strong></li> </ul> <p><strong><strong><span style="font-family: 'Tahoma','sans-serif';">How does someone register?</span></strong></strong></p> <ul> <li><strong><span style="font-family: 'Tahoma','sans-serif';">You need to have computer access. The computer can be yours, a friend’s or relative’s, or your local library’s. You create your own username and password so your information stays private. </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Go to </span><a href="http://www.nfregistry.org"><span style="font-family: 'Tahoma','sans-serif';">www.nfregistry.org</span></a><span style="font-family: 'Tahoma','sans-serif';">. Click on JOIN REGISTRY NOW (orange bar at upper right of screen).</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Create your account by filling out the information under “Create Your Profile”. </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Choose any user name and password you want. Keep it in a safe place so you can log back in.</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Read the Terms and Conditions. If you agree, check the box and enter the code as directed.</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">You are now registered!</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Complete the survey questionnaire. You can stop and save the questionnaire partway through if you wish, and finish it later. The questionnaire should take about 20-30 minutes to complete. </span></strong></li> </ul> <p style="text-align: center;" align="center"><strong><strong><span style="font-family: 'Tahoma','sans-serif';">Questions? Need help registering? Ask Pam!</span></strong></strong></p> <p style="text-align: center;" align="center"><strong><strong><span style="font-family: 'Tahoma','sans-serif';">Pamela Knight, Clinical Program Manager, Children’s Tumor</span></strong><span style="font-family: 'Tahoma','sans-serif';"> <strong>Foundation. Phone: 212-344-6633 extension 8555. Email: </strong></span><a href="mailto:pknight@ctf.org"><strong><span style="font-family: 'Tahoma','sans-serif';">pknight@ctf.org</span></strong></a></strong></p> <p>&nbsp;</p> <p>&nbsp;</p> <p><span style="font-size: 14pt;"><strong><span style="font-family: 'Arial','sans-serif'; color: #1f497d;">Help end neurofibromatosis by joining the confidential NF Registry.&nbsp; To learn more and participate, please click here:&nbsp;<a href="http://www.nfregistry.org/">www.nfregistry.org</a>.</span></strong></span></p> <p>&nbsp;</p> <p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Western New York&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; New York Metro</p> <p><a href="https://www.facebook.com/NFWNYCTF?fref=ts"><img style="width: 144px; height: 44px;" src="images/stories/facebook_logo.gif" /></a> &nbsp;&nbsp;<a href="https://www.facebook.com/groups/173016442818906/"><img style="width: 144px; height: 44px;" src="images/stories/facebook_logo.gif" /></a></p> <hr /> <p><strong style="font-size: 19px;">We have some great fundraising events coming up, come and join us!</strong><strong><span style="font-size: 18pt;"><span style="color: #555555; font-family: Arial, Helvetica, sans-serif; line-height: 19.5px; background-color: #fefefe;">&nbsp;</span></span></strong></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">_______________________________________________________________________________________</span></strong></strong></span></p> <p style="text-align: left;"><span style="font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">Nine-year-old NF Hero Malina, from New Lebanon, NY, has been designing and selling earrings to raise money for neurofibromatosis research. In just ten weeks she has made $1,200, half of which she'll donate to the Children's Tumor Foundation! If you are interested in purchasing some of Malina's earrings, please click on the link to her Facebook page below. Also, please share this page and spread the word. Thank you Malina!!!</span></strong></strong></span><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"> &nbsp;<a href="https://www.facebook.com/Earrings4NF">https://www.facebook.com/Earrings4NF</a></span></strong></strong></p> <p style="text-align: left;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><img src="images2010/MalinaEarrings.jpg" width="450" height="338" alt="MalinaEarrings" /></span></strong></strong></p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">&nbsp;</span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong><span style="font-family: arial, helvetica, sans-serif;">PAST EVENTS:</span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong><span style="font-family: arial, helvetica, sans-serif;"><strong style="font-size: 19px;"><strong><span style="font-family: arial, helvetica, sans-serif;"><strong><img src="images2010/CTF_Rush_FlyerV3.jpg" width="600" height="776" alt="CTF Rush FlyerV3" /></strong></span></strong></strong></span></strong></strong></span><span style="font-size: 14pt;"><strong><span style="font-family: arial, helvetica, sans-serif;"><br /></span></strong><em><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">Staten Island Harley Owner Group keeps the holiday spirit alive on Staten Island for the Children's Tumor Foundation</span></em></span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">During the event we were able to provide presents to each NF Hero that attended, all of which were donated by the riders and our sponsoring dealership Lombardi's Harley Davidson.</span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">While we went there to help make the children and thier families happy, they allowed us all to expierence a gambit of emotions. To see the rough and tough riders with tears in thier eyes and smiles on their faces, you knew in thier heart they were happy to have participated in this event.</span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">&nbsp;</span></p> <p style="text-align: left;"><span style="font-size: 14pt;"><img src="images2010/1462967_10202394557526384_491465398_n.jpg" width="486" height="365" alt="1462967 10202394557526384 491465398 n" style="display: block; margin-left: auto; margin-right: auto;" /></span></p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><a href="http://www.NFwalk.org/westchester" style="text-align: center;"><img src="images2010/Westchester_Walk.jpg" width="616" height="830" alt="Westchester Walk" /></a></span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><img src="images2010/ladybug_invite.jpg" width="604" height="909" alt="LadybugInvite" style="display: block; margin-left: auto; margin-right: auto;" /></span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">&nbsp;</span></strong></strong></span></p> <p style="text-align: center;"><strong>&nbsp;</strong></p> <p style="text-align: center;"><strong><img alt="SI yanks" src="images2010/SI_yanks.jpg" height="776" width="600" /></strong></p> <p><strong>&nbsp;</strong></p> <p><span style="font-size: 14pt; font-family: arial,helvetica,sans-serif;">It's time for the<span style="color: #0000ff;"> <strong>3rd Annual Rochester, NY NF Walk</strong></span> to benefit the Children’s Tumor Foundation Sunday September 29th, 2013</span></p> <p><span style="font-size: 12pt; font-family: arial,helvetica,sans-serif;"><a href="http://www.nfwalk.org/rochester2013"></a><a>www.nfwalk.org/rochester2013</a> </span></p> <p><span style="font-size: 12pt; font-family: arial,helvetica,sans-serif;">&nbsp;</span></p> <p>&nbsp;</p> <p style="text-align: center;"><strong><span style="font-size: 12pt;"><span style="color: #000000;"><strong><span style="color: #ff6600; font-size: 18pt;">Part of NY Mets Awareness Day:</span><br /></strong></span></span></strong></p> <p style="text-align: center;"><strong><span style="font-size: 12pt;"><span style="color: #000000;"><strong><span style="color: #000080;">*Includes ticket in the Pepsi Porch and T-shirt</span><br /><span style="color: #000080;">*$10 of every ticket will be donated back to CTF</span><br /><span style="color: #000080;">*Information table on Field Level concourse</span><br /><span style="color: #000080;">*PSA on Citi Vision</span><br /><span style="color: #000080;">*Spirit Award presentation behind home plate prior to the game</span><br /><span style="color: #000080;">*In-game Awareness over PA/Scoreboard</span></strong></span></span></strong></p> <p style="text-align: center;"><strong><span style="font-size: 18pt;"><span style="color: #000000;"><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Date/Time:</span> <span style="color: #000080;">Friday, June 28th at 7:10pm</span></span></strong></span></span></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Location:</span> <span style="color: #000080;">Citi Field NYC</span></span></strong></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Tickets:</span> <span style="color: #000080;">$45<br /><span style="color: #ff6600;">CTF will mail your tickets to you by June 1st</span></span></span></strong></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Contact:</span> <span style="color: #000080;">Laura Perfetti at</span></span> <a href="mailto:ajmom721@aol.com">ajmom721@aol.com</a> </strong></strong></p> <p style="text-align: center;"><strong><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">To Purchase Tickets:&nbsp;<a href="https://grow.ctf.org/nymets2013">CLICK HERE</a></span> </span></strong><br /><span style="color: #ff6600;">If you cannot attend but would like to make a donation,</span> <a href="http://grow.ctf.org/nymets2013donations?DeliveryChannelID=23b56292-0f3c-43ac-af13-7767ad9d4057">CLICK HERE</a>.</strong></strong></p> <p>&nbsp;</p> <p><span data-mce-bogus="1"><strong><span style="font-family: arial,helvetica,sans-serif;"><strong><span style="font-size: 10pt;"><a href="https://grow.ctf.org/nycpoker2013"></a></span><a href="https://grow.ctf.org/nycpoker2013"><img alt="poker invite 2013" src="images2010/poker_invite_2013.jpg" height="840" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></a></strong></span></strong></span></p> <p style="text-align: center;"><strong>To Register:</strong></p> <p style="text-align: center;"><a href="https://grow.ctf.org/luncheon2013">https://grow.ctf.org/luncheon2013</a></p> <p><img alt="Luncheon-Invitation-Offical final" src="images2010/Luncheon-Invitation-Offical_final.jpg" height="927" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></p> <p>&nbsp;</p> <p>&nbsp;</p> <p><img alt="clink flyer" src="images2010/clink_flyer.jpg" height="771" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></p> <p>&nbsp;</p> <p><span class="BodyTextFont"><span style="font-size: 12pt;"><strong><span style="color: #0000ff;">Staten Island NF Walk</span>,&nbsp;<span class="BodyTextFont"><span style="font-size: 12pt;"><strong>Saturday April 20th 2013 </strong></span></span></strong></span><a href="http://ctf.kintera.org/faf/home/default.asp?ievent=1048931">To Register Click Here</a><br /> This is a great opportunity for children, family and friends to connect at a community event and draw support from each other while raising awareness and funds for neurofibromatosis (NF) research. NF is a genetic disorder that causes tumors to grow on nerves throughout the body. There is no cure nor are there effective treatments for NF. <br /> </span></p> <p><span class="BodyTextFont">&nbsp;</span></p></div><div class="feed-description"><p><span style="font-size: 12pt;"><strong>For more information about CTF and our New York Chapter please contact Julie Pantoliano at 212-344-6633, ext. 8551 or <a href="mailto:jpantoliano@ctf.org">jpantoliano@ctf.org</a>.<br /></strong></span></p> <p>&nbsp;</p> <p><strong><strong><span style="font-size: 26pt; line-height: 115%; color: #1f497d;">Be Heard. Join the NF Registry.</span></strong></strong></p> <p><strong><span style="font-family: 'Tahoma','sans-serif';">The NF Registry is an internet based resource for patients and medical scientists who care about NF. Patients (or their parents/guardians) can contribute their NF experiences to help inform the research community. They can also learn about clinical trials of promising new treatments. The NF Registry currently contains over 2,000 patient records, but it will take even greater numbers of registered patients to push for a better life for those with NF. Why?</span></strong></p> <ul> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To call attention to how many we are – 120,000 in the U.S. alone </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To help understand why NF is so different from person to person </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To show we are a community that will come together to work toward treatments </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">To accurately represent each type of symptom seen in NF</span></strong></li> </ul> <p><strong><strong><span style="font-family: 'Tahoma','sans-serif';">How does someone register?</span></strong></strong></p> <ul> <li><strong><span style="font-family: 'Tahoma','sans-serif';">You need to have computer access. The computer can be yours, a friend’s or relative’s, or your local library’s. You create your own username and password so your information stays private. </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Go to </span><a href="http://www.nfregistry.org"><span style="font-family: 'Tahoma','sans-serif';">www.nfregistry.org</span></a><span style="font-family: 'Tahoma','sans-serif';">. Click on JOIN REGISTRY NOW (orange bar at upper right of screen).</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Create your account by filling out the information under “Create Your Profile”. </span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Choose any user name and password you want. Keep it in a safe place so you can log back in.</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Read the Terms and Conditions. If you agree, check the box and enter the code as directed.</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">You are now registered!</span></strong></li> <li><strong><span style="font-family: 'Tahoma','sans-serif';">Complete the survey questionnaire. You can stop and save the questionnaire partway through if you wish, and finish it later. The questionnaire should take about 20-30 minutes to complete. </span></strong></li> </ul> <p style="text-align: center;" align="center"><strong><strong><span style="font-family: 'Tahoma','sans-serif';">Questions? Need help registering? Ask Pam!</span></strong></strong></p> <p style="text-align: center;" align="center"><strong><strong><span style="font-family: 'Tahoma','sans-serif';">Pamela Knight, Clinical Program Manager, Children’s Tumor</span></strong><span style="font-family: 'Tahoma','sans-serif';"> <strong>Foundation. Phone: 212-344-6633 extension 8555. Email: </strong></span><a href="mailto:pknight@ctf.org"><strong><span style="font-family: 'Tahoma','sans-serif';">pknight@ctf.org</span></strong></a></strong></p> <p>&nbsp;</p> <p>&nbsp;</p> <p><span style="font-size: 14pt;"><strong><span style="font-family: 'Arial','sans-serif'; color: #1f497d;">Help end neurofibromatosis by joining the confidential NF Registry.&nbsp; To learn more and participate, please click here:&nbsp;<a href="http://www.nfregistry.org/">www.nfregistry.org</a>.</span></strong></span></p> <p>&nbsp;</p> <p>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Western New York&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; New York Metro</p> <p><a href="https://www.facebook.com/NFWNYCTF?fref=ts"><img style="width: 144px; height: 44px;" src="images/stories/facebook_logo.gif" /></a> &nbsp;&nbsp;<a href="https://www.facebook.com/groups/173016442818906/"><img style="width: 144px; height: 44px;" src="images/stories/facebook_logo.gif" /></a></p> <hr /> <p><strong style="font-size: 19px;">We have some great fundraising events coming up, come and join us!</strong><strong><span style="font-size: 18pt;"><span style="color: #555555; font-family: Arial, Helvetica, sans-serif; line-height: 19.5px; background-color: #fefefe;">&nbsp;</span></span></strong></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">_______________________________________________________________________________________</span></strong></strong></span></p> <p style="text-align: left;"><span style="font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">Nine-year-old NF Hero Malina, from New Lebanon, NY, has been designing and selling earrings to raise money for neurofibromatosis research. In just ten weeks she has made $1,200, half of which she'll donate to the Children's Tumor Foundation! If you are interested in purchasing some of Malina's earrings, please click on the link to her Facebook page below. Also, please share this page and spread the word. Thank you Malina!!!</span></strong></strong></span><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"> &nbsp;<a href="https://www.facebook.com/Earrings4NF">https://www.facebook.com/Earrings4NF</a></span></strong></strong></p> <p style="text-align: left;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><img src="images2010/MalinaEarrings.jpg" width="450" height="338" alt="MalinaEarrings" /></span></strong></strong></p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">&nbsp;</span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong><span style="font-family: arial, helvetica, sans-serif;">PAST EVENTS:</span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong><span style="font-family: arial, helvetica, sans-serif;"><strong style="font-size: 19px;"><strong><span style="font-family: arial, helvetica, sans-serif;"><strong><img src="images2010/CTF_Rush_FlyerV3.jpg" width="600" height="776" alt="CTF Rush FlyerV3" /></strong></span></strong></strong></span></strong></strong></span><span style="font-size: 14pt;"><strong><span style="font-family: arial, helvetica, sans-serif;"><br /></span></strong><em><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">Staten Island Harley Owner Group keeps the holiday spirit alive on Staten Island for the Children's Tumor Foundation</span></em></span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">During the event we were able to provide presents to each NF Hero that attended, all of which were donated by the riders and our sponsoring dealership Lombardi's Harley Davidson.</span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">While we went there to help make the children and thier families happy, they allowed us all to expierence a gambit of emotions. To see the rough and tough riders with tears in thier eyes and smiles on their faces, you knew in thier heart they were happy to have participated in this event.</span></p> <p style="text-align: left;"><span style="font-size: 12pt; font-family: arial, helvetica, sans-serif;">&nbsp;</span></p> <p style="text-align: left;"><span style="font-size: 14pt;"><img src="images2010/1462967_10202394557526384_491465398_n.jpg" width="486" height="365" alt="1462967 10202394557526384 491465398 n" style="display: block; margin-left: auto; margin-right: auto;" /></span></p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;">&nbsp;</p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><a href="http://www.NFwalk.org/westchester" style="text-align: center;"><img src="images2010/Westchester_Walk.jpg" width="616" height="830" alt="Westchester Walk" /></a></span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;"><img src="images2010/ladybug_invite.jpg" width="604" height="909" alt="LadybugInvite" style="display: block; margin-left: auto; margin-right: auto;" /></span></strong></strong></span></p> <p style="text-align: left;"><span style="text-decoration: underline; font-size: 14pt;"><strong><strong style="font-size: 19px;"><span style="font-family: arial, helvetica, sans-serif;">&nbsp;</span></strong></strong></span></p> <p style="text-align: center;"><strong>&nbsp;</strong></p> <p style="text-align: center;"><strong><img alt="SI yanks" src="images2010/SI_yanks.jpg" height="776" width="600" /></strong></p> <p><strong>&nbsp;</strong></p> <p><span style="font-size: 14pt; font-family: arial,helvetica,sans-serif;">It's time for the<span style="color: #0000ff;"> <strong>3rd Annual Rochester, NY NF Walk</strong></span> to benefit the Children’s Tumor Foundation Sunday September 29th, 2013</span></p> <p><span style="font-size: 12pt; font-family: arial,helvetica,sans-serif;"><a href="http://www.nfwalk.org/rochester2013"></a><a>www.nfwalk.org/rochester2013</a> </span></p> <p><span style="font-size: 12pt; font-family: arial,helvetica,sans-serif;">&nbsp;</span></p> <p>&nbsp;</p> <p style="text-align: center;"><strong><span style="font-size: 12pt;"><span style="color: #000000;"><strong><span style="color: #ff6600; font-size: 18pt;">Part of NY Mets Awareness Day:</span><br /></strong></span></span></strong></p> <p style="text-align: center;"><strong><span style="font-size: 12pt;"><span style="color: #000000;"><strong><span style="color: #000080;">*Includes ticket in the Pepsi Porch and T-shirt</span><br /><span style="color: #000080;">*$10 of every ticket will be donated back to CTF</span><br /><span style="color: #000080;">*Information table on Field Level concourse</span><br /><span style="color: #000080;">*PSA on Citi Vision</span><br /><span style="color: #000080;">*Spirit Award presentation behind home plate prior to the game</span><br /><span style="color: #000080;">*In-game Awareness over PA/Scoreboard</span></strong></span></span></strong></p> <p style="text-align: center;"><strong><span style="font-size: 18pt;"><span style="color: #000000;"><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Date/Time:</span> <span style="color: #000080;">Friday, June 28th at 7:10pm</span></span></strong></span></span></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Location:</span> <span style="color: #000080;">Citi Field NYC</span></span></strong></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Tickets:</span> <span style="color: #000080;">$45<br /><span style="color: #ff6600;">CTF will mail your tickets to you by June 1st</span></span></span></strong></strong></p> <p style="text-align: center;"><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">Contact:</span> <span style="color: #000080;">Laura Perfetti at</span></span> <a href="mailto:ajmom721@aol.com">ajmom721@aol.com</a> </strong></strong></p> <p style="text-align: center;"><strong><strong><strong><span style="color: #0000ff;"><span style="color: #ff6600;">To Purchase Tickets:&nbsp;<a href="https://grow.ctf.org/nymets2013">CLICK HERE</a></span> </span></strong><br /><span style="color: #ff6600;">If you cannot attend but would like to make a donation,</span> <a href="http://grow.ctf.org/nymets2013donations?DeliveryChannelID=23b56292-0f3c-43ac-af13-7767ad9d4057">CLICK HERE</a>.</strong></strong></p> <p>&nbsp;</p> <p><span data-mce-bogus="1"><strong><span style="font-family: arial,helvetica,sans-serif;"><strong><span style="font-size: 10pt;"><a href="https://grow.ctf.org/nycpoker2013"></a></span><a href="https://grow.ctf.org/nycpoker2013"><img alt="poker invite 2013" src="images2010/poker_invite_2013.jpg" height="840" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></a></strong></span></strong></span></p> <p style="text-align: center;"><strong>To Register:</strong></p> <p style="text-align: center;"><a href="https://grow.ctf.org/luncheon2013">https://grow.ctf.org/luncheon2013</a></p> <p><img alt="Luncheon-Invitation-Offical final" src="images2010/Luncheon-Invitation-Offical_final.jpg" height="927" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></p> <p>&nbsp;</p> <p>&nbsp;</p> <p><img alt="clink flyer" src="images2010/clink_flyer.jpg" height="771" width="600" style="display: block; margin-left: auto; margin-right: auto;" /></p> <p>&nbsp;</p> <p><span class="BodyTextFont"><span style="font-size: 12pt;"><strong><span style="color: #0000ff;">Staten Island NF Walk</span>,&nbsp;<span class="BodyTextFont"><span style="font-size: 12pt;"><strong>Saturday April 20th 2013 </strong></span></span></strong></span><a href="http://ctf.kintera.org/faf/home/default.asp?ievent=1048931">To Register Click Here</a><br /> This is a great opportunity for children, family and friends to connect at a community event and draw support from each other while raising awareness and funds for neurofibromatosis (NF) research. NF is a genetic disorder that causes tumors to grow on nerves throughout the body. There is no cure nor are there effective treatments for NF. <br /> </span></p> <p><span class="BodyTextFont">&nbsp;</span></p></div>