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Want to learn more about the Iowa Affiliate? Want to host your own event or come to one of ours? Contact us at
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SAVE THE DATE
NF Family Picnic
Sunday, October 4, 2009
12:30 pm - 3:00 pm
Raccoon River Park - Coneflower A West Des Moines
Meet and share experiences with other NF families.
Details mailed soon.
For more information or to help contact:
Carla Hinrichs,
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or 515 457-7345 or
Kori Ensley,
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or 515 457-3032
PAST EVENTS:
May is NF Awareness Month
NF Education Meeting and Pizza Party
Friday, May 15 2009 6:00 - 8:00 pm
Kelley Dining Room - Iowa Methodist Medical Center, Des Moines, Iowa. Kim Piper - State Genetics Coordinator - Iowa Department of Public Health and Kathy Lowenberg Department of Genetics Social Worker at The University of Iowa Hospitals and Clinics will answer your questions about resources that are available to NF families.
Meet and share experiences. All families and individuals affected by NF are invited to attend.
Pizza and drinks will be provided at no cost - or you can go through the cafeteria line at your own expense.
RSVP or questions to Chuck Burket, 515 986-2006, or Xan Taylor, 515 986-2182,
Plans are in the works for NF Family Picnics in the Waterloo and Des Moines area this summer.
To help, call Sheila Drevyanko, 515 277-8494,or Linda Lynch, 319 233-0482,
The Children's Tumor Foundation, Inc - Ending Neurofibromatosis Through Research
- Iowa Affiliate
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www.ctf.org
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Iowa Affiliate
