UPCOMING EVENTS:

SAVE THE DATE!! The University of Iowa NF Clinic is making plans for a NF Education meeting in June in Des Moines! There will be a research update from the June 8-10 CTF National Family Forum in New Orleans www.ctf.orgas well as other topics. We would also love to plan children's activities during the meeting! Please let me know if you would like to be on the planning committee. Sheila 515 277-8494.

RECENT EVENTS:

The 2011 Neurofibromatosis Symposium-Presented by NF Midwest

Date:         Saturday, October 15, 2011

Time:         8:00 AM to 4:00 PM

Location: Renaissance St. Louis Airport Hotel
                   St. Louis, Missouri

Join NF Midwest for an exciting day in which you will meet other families dealing with NF and hear specialists tell us
about the latest progress in NF research, current treatment options, and practical advice for living with NF.

Please check out www.nfmidwest.org/symposium2011 for more information.

Join us for the 2nd Annual Iowa NF Walk!

The Iowa NF Walk is a great opportunity for family, friends and co-workers to enjoy a fun day while taking steps to end NF!

Join us on the beautiful Raccoon River Park 3.2 mile path in West Des Moines .

Date: Saturday, September 17, 2011

Location: Raccoon River Park
2500 Grand Ave.
West Des Moines, IA 50265

Time: 9:00 A.M - Check-in/Registration
10:00AM - Welcome, Group Picture and Walk begins

REGISTRATION IS FREE, but we are hoping you will set a goal of raising $100 or more for NF research.

Refreshments will be provided. Dogs on leashes are welcome! T-shirts will be available for sale at the walk.

For more information contact: Sheila Drevyanko at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or (515) 277-8494

We hope to see you there!

Join us for the 3rd Annual
National Patient and Family Symposium
July 28-31, 2011 . Minneapolis, Minnesota

Get Informed: Learn about the latest in NF research and
care.
Connect
: Meet families affected by NF from across the US.
Discover: Find out about the resources of the Foundation and the NF Community.
Become Empowered: Learn how to champion the Foundation and NF in your local community.

NEW FOR 2011!
Health Fair for Individuals with NF2 or Schwannomatosis

The Children's Tumor Foundation is partnering with Mayo Clinic to offer a "Health Fair" for individuals with NF2 or Schwannomatosis on July 29, 2011 as part of the NF Forum. The "Health Fair" is designed to provide an opportunity for a select group of individuals with NF2 or Schwannomatosis to be informally evaluated by an expert panel consisting of medical professionals (surgeons, neurologists, geneticists, ENTs, and others) that have special expertise with NF2 or Schwannomatosis. Evaluation by experts is at no charge to patients. Read more

If you need financial assistance please contact Traceann at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

NF Family Walk
Saturday September 17, 2011

More details to come!

May is NF Awareness Month

NF Education Meeting and Pizza Party
Friday, May 15 2009 6:00 - 8:00 pm

Kelley Dining Room - Iowa Methodist Medical Center, Des Moines, Iowa. Kim Piper - State Genetics Coordinator - Iowa Department of Public Health and Kathy Lowenberg Department of Genetics Social Worker at The University of Iowa Hospitals and Clinics will answer your questions about resources that are available to NF families.

Meet and share experiences. All families and individuals affected by NF are invited to attend.
Pizza and drinks will be provided at no cost - or you can go through the cafeteria line at your own expense.

RSVP or questions to Chuck Burket, 515 986-2006, or Xan Taylor, 515 986-2182,

Plans are in the works for NF Family Picnics in the Waterloo and Des Moines area this summer.
To help, call Sheila Drevyanko, 515 277-8494,or Linda Lynch, 319 233-0482,

The Children's Tumor Foundation, Inc - Ending Neurofibromatosis Through Research
- Iowa Affiliate

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