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Hi! Welcome to the Children's Tumor Foundation Michigan Chapter! We would love to hear from you!
Please contact Sheila Cohoon for Eastern Michigan at
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Or, contact Marianne Mick for Western Michigan at
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To contact the Children's Tumor Foundation directly, please email Amita at
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Are you on Facebook? If so join us on Facebook!
UPCOMING EVENTS:
JOIN US
Sunday, September 23, 2012 for the First Annual Addison Oaks, MI NF Walk!
The Children's Tumor Foundation is currently forming teams and recruiting volunteers to participate in the First Annual NF Walk at beautiful Addison Oaks County Park in Leonard, MI!
WE NEED YOUR HELP!
The Addison Oaks NF Walk is a great opportunity to connect with other people affected by neurofibromatosis (NF) and form lasting friendships, while raising awareness and funds for NFresearch, but we can’t do it without you! For more information on donating, volunteer opportunities or to REGISTER, click here.
There will be two events, one 2.5-mile Walk and one timed 5K Run.
Registration is $30 for runners and $25 for walkers. Registration gets you a free Children’s Tumor Foundation t-shirt that you can wear on walk day. Refreshments will be provided and there will be games, face-painting and more fun activities!
Can’t make it to the walk?Make a donation ONLINE TODAY or make a check out to “Children’s Tumor Foundation,” and mail to:
Children’s Tumor Foundation
Attn: Addison Oaks NF Walk
95 Pine Street
16th Floor
New York, NY 10005
Thank you for taking steps toward an end to NF!
For updates on the Addison Oaks NF Walk,visit our Facebook event page here.
Contact Christy Wheaton at (248) 924-4273 or
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for more information.
Would you like to be removed, or do know another NF family that would like to be added to our mailing list? Send an email address to Jessica Beckerman at
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RECENT EVENTS:
COMEDY FOR A CAUSE
Join the Children's Tumor Foundation for a night of laughs at the Connxtions Comedy Club!
Date: Saturday March 31st, 2012
Time: 8 p.m.
Location: Connxtions Comedy Club
5319 Heatherdowns Blvd.
Toledo, OH 43614
Comedian Mike Brody
Tickets are $15 each, pre-sale only. Proceeds go Children's Tumor Foundation
Please contact Mindy (734)915-4081 or
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for tickets or information.
Red Wings 50/50 Raffle
Volunteer with the Children's Tumor Foundation to raise NF awareness and funds at the Red Wings 50/50 Raffle fundraiser!
Date: February 17, 2012
Time: Volunteers must be there at 4 pm; the game starts at 7:30 pm
Location: Joe Louis Arena
Volunteers will sell raffle tickets during the game with 50% of proceeds going to the raffle winner, 25% to the Red Wings Foundation, and 25% goes to the Children's Tumor Foundation. This is a great opportunity to meet others affected by NF and watch the game.
Interested? Contact Mindy Standifer at
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Pasta with a Purpose
Please Join Us On Wednesday, December 7th, 2011 for Our 10th Annual Pasta with a Purpose
Your $7 Donation Includes: Salad, Spaghetti, Bread, Coffee, and Dessert
Invite your friends and family to join us!
EVENT LOCATION:
American Legion Post #4
401 N. Groesbeck
Mt. Clemens, MI 48043
SPECIAL APPEARANCE:
Bring your children to visit with Santa!
12-Noon until 2 and again from 4:30pm until 6pm
(Don’t forget to bring your Christmas list and camera!)
For more information, please contact Darryl Chene (586) 899-4708
The Michigan NF2 Support Group Meeting with the West Bloomfield Acoustic Neuroma Association (Support Group)
Date: Saturday, Oct. 1, 2011
Time: 1:00-3:00 p.m.
Location: West Bloomfield Twp. Public Library
4600 Walnut Lake Road
West Bloomfield, MI 48323
(248) 682-2120
Guest Speakers include Dr. Steven Telian, Professor, Department of Otolaryngology; Director, Division of Otology, Neurotology and Skull Base Surgery
Clinical interests include acoustic neuroma treatment outcome, vestibular rehabilitation.
Family members, caregivers, and friends are encouraged to attend.
Sue Deer Hall will provide captioning.
NF Family Picnic!
Join fellow Michiganders for a fun family picnic. This is not a fundraiser, but a time to connect and share your experiences with other families affected by NF.
Location: Winter Cover Pavilion Shelter B at Stoney Creek Metropark
Date: Sunday, September 11, 2011
Time: 2pm-?
There will be fun games for kids, food, drinks, and possibly an awareness walk!
If you have any questions or would like to attend, please contact Sheila Cohoon at
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(586) 713-6464
Location: Au Gres City Park
522 Park Street
Au Gres, MI 48703
Registration: 9:00 AM, 10:00 AM Group Picture and Walk begins
Entry Fees:
Adult $25.00
Children (15 and under) $10
Children (2 and under) Free
Family (up to 5 family members - 2 Adults max) $50.00
Dogs on leashes are welcome to walk for NF free!
Multi - Family Garage Sale - proceeds to the Children's Tumor Foundationge
Saturday, October 23 from 8:00 to 3:00.
8580 Huron River Dr. Dexter, MI 48130
Come stop by and say hi and see if you see something you like!
Team Izzy at the KWings
November 12th
Puck drops at 7:30 against Gwinnett at Wing's Stadium, Kalamazoo, MI.
$1 beer and $1 hot dogs
100% of the chuck a puck sales goes to Children's Tumor Foundation!!!
Adults are $13, kids under 10 are $7
Contact Marianne to get your tickets
269-823-3691
Saturday May 16th 2009 - NF Awareness Dinner
Where: Ramada Plaza Hotel Troy/ Detroit (Formally the Hilton Troy) - 5500 Crooks Road, Troy, Ml 48098 Phone 248-879-2100
Time: Doors Open at 6:00pm finishes at 9:00pm
Plated Dinner served at 6:30pm.
Cost: $15.00 per person if your Registration is mailed by May 8th, 2009. $20.00 per person if mailed after May 8th, 2009 (Subject to availability - please call Paul Abbott at 586 322 8612 to confirm if space is available)
Guest Speaker: Dr. Brian Weiss, Assistant Professor of Hematoogy and Oncology at Cincinnati Children's Medical Center.
Subject: Dr. Weiss will be addressing pediatric and adult NF specific issues
Captioning available
Saturday September 26th: NF Fun Walk
Come out for the Michigan NF Walk!
Winter Cove Picnic Area
Stony Creek Metropark
4300 Main Park Road, Shelby Township, MI 48316
For more information or to register please visit the NF Fun Walk website: http://www.nf-funwalk.org/
October 4th: Brooksie Way Half Marathon
October 5th: Michigan Golf Tournament
Great Oaks Country Club
Rochester, MI 48307
Questions? Call Kathy at 248.705.5565 or email her at
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View flyer here.
October 18th: Detroit Marathon & Half Marathon
Need more information on any of the listed events? Or have an event that you need publicized? Or just looking for some local support please contact us at
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Michigan Chapter
