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Hi, welcome to the Minnesota Chapter.  If you are interested in becoming more involved, hosting your own event or just looking for some local NF support please contact Amita at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

We look forward to hearing from you!

Are you on Facebook? Connect with the local NF Group in Minnesota

Connect with the Minnesota NF Endurance Team on Facebook

Check out local Minnesota Chapter families sharing their stories of NF!

"Mother Fights for a Cure and Educated Others on NF" 

"Overlooked Disease Affects 1 In 3,000 Children" 

"Neurofibromatosis Walk for Awareness" 

"Robbinsdale Family Gives 'Thanks" after a Tough Year"

UPCOMING EVENTS:

Save the Date! the University of Minnesota and Mayo Clinc's NF symposium 2012 will be on Wednesday, May 16, 2012.

Save the Date! Waterpark of America Fundraiser on April 29, 2012!

RECENT EVENTS:

Twin Cities Marathon Pasta Dinner

Join the NF Endurance Team and the Minnesota Chapter as we celebrate the NF Endurance Team, the people who made this season a success and carb up our Twin Cities Marathon Runners.  You'll be inspired by highlights of the season, fundraising successes and a spirit to pursue a cure for NF.   Bring the whole family to enjoy dinner, inspirational speakers, a silent auction, a raffle, and a kid zone. 

Date: Saturday, October 1

Time: 5:00-8:30 (dinner buffet at 6:00)

Location: St. Paul College
                  235 Marshall Avenue
                  St. Paul, MN 55102

$25 Adults; $10 Children (12 and under)
Please pay at the door, cash/check only
All NFET TCM runners attend at no charge!

Please RSVP to Jennifer Gorder at This e-mail address is being protected from spambots. You need JavaScript enabled to view it by September 24th
 

Join us for the 3rd Annual
National Patient and Family Symposium
July 28-31, 2011 . Minneapolis, Minnesota
 

• Get Informed: Learn about the latest in NF research
• and
• care.
• Connect
• : Meet families affected by NF from across the US.
• Discover: Find out about the resources of the Foundation and the 
• NF
• Community.
• Become
• Empowered
• : Learn how to champion the Foundation and NF in your local community.
  
   

NEW FOR 2011! 
Health Fair for Individuals with NF2 or Schwannomatosis

The Children's Tumor Foundation is partnering with Mayo Clinic to offer a "Health Fair" for individuals with NF2 or Schwannomatosis on July 29, 2011 as part of the NF Forum. The "Health Fair" is designed to provide an opportunity for a select group of individuals with NF2 or Schwannomatosis to be informally evaluated by an expert panel consisting of medical professionals (surgeons, neurologists, geneticists, ENTs, and others) that have special expertise with NF2 or Schwannomatosis. Evaluation by experts is at no charge to patients. Read more
 

If you need financial assistance please contact Traceann at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

NF Community Symposium with Eric Legius, M.D.
Sunday, May 2, 2010 at 6 p.m.
Twin Cities Campus, University of Minnesota
Dinner will be provided.

We would like for families who may not be able to attend the all day symposium to
have a chance to take part in this neurofibromatosis event, or, in addition to the all
day symposium, this event will be more specific to families. For this evening event,
the agenda will be an informal gathering to hear Eric Legius, M.D., of the Catholic
University of Leuven in Belgium speak. Dr. Legius specializes in molecular
pathogenesis of tumors in patients with neurofibromatosis type 1, molecular
pathogenesis of microdeletions in neurofibromatosis type 1 and intestinal
neurofibromatosis.

Families are encouraged to bring their children to this event
where there will be a staff member conducting activities for them during Dr. Legius’
presentation.

Please contact Amy Gaug at (612) 626‐2602 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it to receive
further details and to RSVP to the event.

All Day Neurofibromatosis Symposium

Monday, May 3, 2010 from 8:30 a.m. – 4:30 p.m.
McNamara Alumni Center Great Room
Twin Cities Campus, University of Minnesota

Lunch will be provided.

Please contact Amy Gaug at (612) 626‐2602 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it to be added to the list to receive further details
and to RSVP to the event.

The programs are sponsored by the Children’s Tumor Foundation through generous funding to the Mayo Clinic
Neurofibromatosis Clinic and the Minnesota Neurofibromatosis Clinic without Walls. Support is also provided by the
Children’s Cancer Research Fund and the University of Minnesota Masonic Cancer Center.

 Click here to view agenda