|
Upcoming Events:
If you would like further information on the Washington Chapter and how to get involved, host an event, and connect with the local NF community please email us at
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
For information on upcoming meetings and events please email:
Kelly Mills
Regional Manager-Volunteer Relations (Mountain & Pacific Regions)
The Children's Tumor Foundation, California Chapter
8939 S. Sepulveda Blvd., Suite 516
Los Angeles, CA 90045-3616
310-216-9570
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
|
|
Download: The NF School Connection -- a brochure designed to help address your child's
educational needs. "How To" Information Packet click here!
The brochure was created with the generous assistance of the Community Fund of Boeing Puget Sound.
We would like to thank Nancy Dunbar for her work on behalf of NF. Please feel free to read the paper Nancy Dunbar presented to a recent conference. Nancy investigated the question of whether primary care physicians understand the significance of multiple cafe au lait spots and how they refer patients. You may download Nancy's paper by clicking here: Nancy's Paper
We would like to thank Mrs. HeeWon Livingstrone of Wakefield, Massachusetts for her translation of an NF Brochure related to education. Please click the following links to access pages of the KOREAN TRANSLATION: page 1, page 2, page 3, page 4, page 5, page 6, page 7.
|
|
|
|
NF Medical Resources in Washington State
|
University of Washington - Adults
Medical Genetics Clinic
ADULTS Only NF1 & NF2
Clinical Genetics & Genetic Counseling Only
Will refer to other specialists
Clinic opens: Tues/Thurs AM
Robin Bennett, MS (Coordinator)
Box 357720
1959 NE Pacific St.
Seattle, WA 98195-7720
Tel: 206-616-2135
Fax: 206-616-2414
Dr. Wylie Burke
Dr. Wendy Raskind
Dr. Virginia Sybert
Dr. Marshall Horwitz
Dr. Gail Jarvik |
Children's Hospital & Regional Medical Center
Darci Lise Sternen, MS (coordinator)
PO Box 5371/CH-25
Seattle, WA 98105
Tel: 206-987-2056
Fax: 206-987-2495
Dr. Ian Glass — Dr. Melissa Parisi
Dr. Roberta Pagon — Dr. Mark Hannibal
Dr. Michael Raff — Dr. Phillip Chance
Virginia P. Sybert, M.D.
Pediatric Dermatology
206-326-2111
CHILDREN Only —NF1 & NF2
Dr. Gerald Milstein, Pediatric Neurologist
Tel 206-526-2000
Clinic opens: 9-4 PM Tuesdays
*Sometimes travels to clinics in Eastern WA and Alaska
|
|
|
|
|
|
|
Washington Affiliate
