You are here:
| New survey opportunity for NF1 teens and their parents |
 |
 |
 |
|
A new opportunity to participate in a survey led by a researcher interested in learning more about NF1 and the transition of healthcare. The study seeks to gain a better understanding of the issues adolescent NF1 patients face as they move into adult medical care and learn to become more independent with their medical needs. Our hope is to discover ways to improve healthcare for adolescent patients who have NF1, based on opinions from adolescent patients and their parents. If you are currently a parent or legal guardian of an adolescent affected with NF1, you are both invited to participate in this study: www.NFtransitionsurvey.com
|
