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The Neurofibromatosis Clinic Network (NFCN) PDF Print E-mail

 

NFCN recognizes clinics that provide appropriate NF care through implementation of current consensus clinical care guidelines for the NF patient population. The Children’s Tumor Foundation invites clinics in the United States that see patients affected with NF to apply for Affiliate Clinic status in the Foundation’s NFCN

NFCN aims to:

  • Improve clinical care for those living with NF1, NF2 or schwannomatosis
  • Promote information sharing and collaboration between those providing medical care to the NF population
  • Integrate NF clinical care and the advancement of NF research  

 

How do centers become part of the NFCN

Centers must submit an application to NFCN. Applications  are accepted on a rolling basis and reviewed by members of our Clinical Care Advisory Board.  Based on the information provided, clinics deemed to provide appropriate NF care through multidisciplinary implementation of current consensus clinical care guidelines will achieve NFCN Affiliate status.

NFCN Affiliate Clinics are recognized as such for one calendar year after approval, with renewal based on excellence of NF care as demonstrated by an annual report. 

 

Funding opportunities: 

Various opportunities are announced to NFCN Affiliates each fall for the following year.

 

To apply to NFCN and for additional information:
If you would like to receive the NFCN Application packet or are interested in learning more about the NFCN, please contact  Dr. Kim Hunter-Schaedle, Chief Scientific Officer at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

 

Upcoming Events

Sat Feb 11, 2012 @ 2:00pm -
Wisconsin: Tea for NF
Fri Feb 17, 2012 @ 4:00am - 10:00pm
Michigan: Red Wings 50/50 Raffle
Sat Feb 18, 2012 @ 8:00pm -
Arizona: CTF Benefit Concert - (X Factor) TORA WOLOSHIN
Sat Feb 25, 2012 @10:00am - 02:00pm
Arizona: Spring For A Cure
Sat Mar 03, 2012 @ 7:00pm -
NJ: Coffeehouse for a Cure
Sun Mar 04, 2012 @ 3:00pm -
NY: CTF Night with the NY Islanders