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What is the Neurofibromatosis Clinic Network (NFCN)?

In 2007, the Foundation established the NF Clinic Network (NFCN) to standardize and improve NF clinical care in the US, and to integrate it with NF research. Looking ahead, NFCN will constitute a comprehensive information source for NF patients and for the NF clinical community.

As of  December 2009, there are 42 recognized clinics in the NFCN.  To review detailed information about each program, please click on the clinic name below:

CTF NFCN Affiliate Clinics
The following Clinics have been named "Affiliate Clinics," by CTF’s Clinical Care Advisory Board, for providing outstanding NF care through their implementation of current consensus clinical care guidelines.

To review detailed information about the services that each Affiliate Clinic provides, please click on the clinic name below:

ALABAMA: University of Alabama at Birmingham
ARIZONA: St. Joseph's Hospital
ARKANSAS: University of Arkansas
CALIFORNIA: Children's Hospital Los Angeles
CALIFORNIA: Santa Clara Valley Medical Center
CALIFORNIA: UCSF Children's Hospital
COLORADO: Denver Children's Hospital
DISTRICT OF COLUMBIA: Children's National Medical Center
FLORIDA: University of South Florida
FLORIDA: Florida Hospital of Orlando
FLORIDA: University of Maimi
ILLINOIS: Children’s Memorial Hospital
ILLINOIS: University of Chicago
INDIANA: Indiana University
LOU ISIANA: Louisiana State University
MASSACHUSETTS: Children's Hospital Boston
MASSACHUSETTS: Massachusetts General Hospital
MARYLAND: National Institutes of Health
MARYLAND: Johns Hopkins Neurofibromatosis Clinic
MICHIGAN: Henry Ford Hospital
MINNESOTA: Mayo Clinic
MINNESOTA: University of Minnesota/Neurocutaneous Clinic Without Walls Clinic
MISSOURI: Washington University School of Medicine
MISSOURI: Cardinal Glennon
NORTH CAROLINA: Duke University
NORTH CAROLINA: University of North Carolina
NEW JERSEY: University of Medicine and Dentistry of New Jersey
NEW YORK: New York University
NEW YORK: Cornell University
NEW YORK: Columbia University
NEW YORK: Montefiore Medical CenterUniversity of Minnesota/Neurocutaneous Clinic Without Walls Clinic
OHIO: The Cleveland Clinic
OHIO: Cincinnati Children's Hospital
OHIO: Ohio State University
OKLAHOMA: University of Oklahoma
PENNSYLVANIA: University of Pennsylvania Neurofibromatosis Clinic
TEXAS: Texas Children's Hospital
UTAH: University of Utah
WASHINGTON: Children's Hospital and Regional Medical Center
WISCONSIN: Children's Hospital of Wisconsin

How to apply:

To apply for NFCN affiliate status, please complete the following application: 2010 NFCN Application (Word doc). 

Applications are accepted on a rolling basis.

For any questions about this program, please contact Kathleen Berentsen at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call (212)344-6633, ext. 227.

International Clinics:  We are currently in the process of revising our International NF Clinic program.  If you are interested in learning more, please contact the Foundation at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .