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Send a message to Congress to support NF research funding!

Securing federal funding for NF research is one of the most important parts of our mission.  The Foundation and its volunteers are active participants in the legislative process, and we invite you to join in this vital program. 

What You Can Do

Your elected officials need to hear from you!  We’ve made the process easy.  Just fill out the form below and send a personal note expressing your support for NF funding.   In order to have the greatest impact, please include your name and address, and your note will be delivered to the elected official that represents you in Congress.

Here is some sample text you can include in your note; feel free to modify and add your own personal story:
(click inside the text to select all) 

I am writing to ask that you support medical research into neurofibromatosis (NF) conducted by the Department of Defense Congressionally Directed Medical Research Program (CDMRP). This research targets diseases and disorders that impact the American military, their families, veterans, and the public. NF occurs in one in every 3,000 births, causes tumors to grow along the nervous system, and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities, and excruciating and disabling pain. In addition to benefitting those with NF, this research is shedding light on several forms of cancer, brain tumors, bone abnormalities, and learning disabilities, ultimately benefiting the broader community. NF research is at a critical stage. Great strides have been made but further funds are needed to translate clinical trials into effective treatments. I respectfully request that you continue funding the Army’s Neurofibromatosis Research Program. With your support, we can move closer to the goal of ending NF forever. Thank you.

Click here to learn why advocacy is important, and more about our past success.