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Proclamation for May is NF Awareness Month - Help Spread the Word! PDF Print E-mail

Below is a Proclamation declaring May as NF Awareness Month.  To help spread the word about NF contact your local, state and federal government officials and ask them to sign the Proclamation.  To find your state and federal representatives' contact information click here.  Thank you for helping to spread the word about NF!

May is NF Awareness Month Proclamation Word Document.

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Love. Loss. Life. Melissa Pecoy tells her story of living with NF2 PDF Print E-mail
Click here to read Melissa's story from the May issue of  Change Starts at Home.
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Advocate for NF PDF Print E-mail
Federal funding has been vital to the advances we have seen in NF research.  Maintaining this funding is of critical importance to continue basic and translational research, and to fund more clinical trials.  Visit this section to read the recent update on advocacy, as well as a history of the program.
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Spring 2009 Newsletter PDF Print E-mail
Check out all that's been going on with the Foundation over the last couple months in our Spring Newsletter!
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The NF Preclinical Consortium PDF Print E-mail

NF Preclinical Consortium 


In 2007, the Children’s Tumor Foundation invested $4M to launch the Neurofibromatosis Preclinical Consortium (NFPC) to test candidate drug therapies for neurofibromatosis in NF1 and NF2 models; compare the responses of different NF tumors to the same drug; and identify candidate clinical therapies. Though a competitive process, 6 Centers were selected – four NF1 and two NF2. NFPC has successfully established a preclinical drug testing pipeline and formed productive collaborations with industrial partners such as Novartis and Genentech. NFPC has been CTF’s most significant research investment to date. The FIRST cycle of NFPC funding concludes June 30, 2011.

CTF announced a SECOND round of NFPC funding for 2011-2013 and is in process of selecting the new sites. Look for a announcement on the new NFPC Centers in fall 2011!

CLICK HERE TO LEARN MORE

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