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This section of the CTF website offers resources for those interested in participating in a current NF clinical trial or research study, or in donating NF tissue to medical research.

LOOKING FOR A CLINICAL TRIAL OR RESEARCH STUDY TO JOIN?

All information on current NF clinical trials and research studies is accessible from the drop-down menus on the left hand side of this page. Please click on the appropriate button to get started.

Studies are grouped first by disorder (e.g. NF1) then subdivided by the tissue target of the trial (e.g. plexiform neurofibroma, optic glioma). More information can be found by clicking on hot-linked text. FAQ's offers general information on clinical trials & research studies.

RESEARCHERS: WANT TO SUBMIT A CLINICAL TRIAL OR RESEARCH STUDY LISTING?

Study Coordinators or Study Chairs wishing to submit a clinical trial or research trial for listing on this page should download & complete the form below.

Submission Form

Completed form plus Institutional Review Board (IRB) approval for each study site involved should be sent to Min Wong: This e-mail address is being protected from spambots. You need JavaScript enabled to view it . Once approved for listing, your trial will be posted here as soon as possible and may additionally be promoted to our community by the Foundation in our Newsletters and email NewsBlasts.

WANT TO DONATE TISSUE TO A TISSUE BANK FOR CLINICAL RESEARCH?

We receive many queries from individuals with NF and their families either wishing to donate tissue removed during surgery to medical research, or to bequeath their bodies to research after death.

Below is a list of tissue banks that can be contacted.

Tissue Donation Information

Questions? Comments?

Contact Min Wong: This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 212-342-6633 x242