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CALIFORNIA
California Ear Institute
Multiple locations: Palo Alto, San Ramon, Santa Rosa
Phone: (650) 494-1000
Physician: Joseph Roberson, MD
Website: http://www.calear.com/index.php
Note: NF2
Children’s Hospital Los Angeles
Nuerocutaneous Disorders Program
4650 W. Sunset Blvd.
Los Angeles, CA 90027
Clinic Co-Directors: Tena Rosser, MD and Linda Randolph, MD
Clinic Coordinator: Kate Kelts, RN
Telephone: 323-361-3727 or 323-361-2178
Fax: 323-361-1109 (Dr. Rosser) or 323-361-1172 (Dr. Randolph)
Note: NF1, NF2, Schwannomatosis, Pediatrics, Adults
Member of Neurofibromatosis Clinic Network (NFCN)
Website: http://www.chla.org/site/c.ipINKTOAJsG/b.5207559/k.BF78/Home.htm
NF Clinic Phone Number for Scheduling Appointments: 323-361-3727 or 323-361-2178
Clinic Director Name: Tena Rosser, MD and Linda Randolph, MD
Please contact Kate Kelts BEFORE referring patients to this clinic
Children’s Hospital Oakland
Medical Genetics Clinic
744 52nd Street
Oakland, CA 94609
Website: http://www.childrenshospitaloakland.org/
Telephone: 510-428-3550
Note: NF1, pediatrics
House Ear Institute
2100 W. 3rd Street
Los Angeles, CA 90057
Telephone: 213-483-4431
TDD: 213-484-2642
Website: http://www.hei.org/
Multiple NF2 specialists: http://www.hei.org/about/clinic/clinic.htm
Note: NF2; pediatric and adult patients
Kaiser Permanente
Neurofibromatosis Program
Department of Genetics
280 West MacArthur Blvd.
Oakland, CA 94611
Clinic Coordinator: Karen Frey, PNP, MS, RN
Telephone: 510-752-1378
Note: NF1, NF2, pediatrics
Website: http://mydoctor.kaiserpermanente.org/ncal/facilities/region/eastbay/area_master/home/
Lucille Packard Children’s Hospital at Stanford
Genetics/Medical Clinic
730 Welch Road, 2nd Floor
Palo Alto, CA 94304
Telephone: 650-723-6858
Website:http://www.lpch.org/clinicalSpecialtiesServices/ClinicalSpecialties/Genetics/genetics.html
Note: NF1, pediatrics
Medical Genetics Institute
Cedars-Sinai Medical Center
8700 Beverly Blvd
PACT, Suite 400
Los Angeles, CA 90048
Phone: 310-423-9914
Website http://www.cedars-sinai.edu/Patients/Programs-and-Services/Medical-Genetics-Institute/Scheduling-An-Appointment-.aspx
Note: NF1, NF2, Adults, Pediatrics
Santa Clara Valley Medical Center
South Bay Regional Genetics Center
Valley Specialty Center- 3rd Floor
751 South Bascom Avenue
San Jose, CA 95128
Clinic Director: Robert Wallerstein, MD
Clinic Coordinator: Donna Wallerstein, MS, CGC
Telephone: 408-885-3306
Member of Neurofibromatosis Clinic Network (NFCN) ; NF1, NF2; schwannomatosis, pediatrics, adult
Website: http://www.scvmed.org/portal/site/scvmc/
University of California, San Diego
Medical Center Moores Cancer Center
Santosh Kesari, MD, PhD
Associate Professor, Neurosciences
Tumor Growth, Invasion & Metastasis Program
3855 Health Sciences Drive
La Jolla, CA 92093
Telephone: 858-822-6100
Website: http://cancer.ucsd.edu/summaries/skesari.asp
Note: NF1, Adults
University of California at San Francisco
NF/Ras Pathway Clinic
UCSF Children’s Hospital
400 Parnassus Avenue, 2nd Floor
Pediatric Specialties Clinic
San Francisco, CA 94143
Clinic Director: Katherine Rauen, MD, PhD
Clinic Coordinator: Vicki Cox, MS
Phone: 415-476-2757
Note : NF1, NF2, schwannomatosis;
Member of Neurofibromatosis Clinic Network (NFCN)
Website: http://www.ucsfhealth.org/clinics/nf_ras_pathway/
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