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The number of open clinical trials for neurofibromatosis is growing! For the most current neurofibromatosis clinical trials please visitwww.clinicaltrials.gov and enter search term 'neurofibromatosis'.

In addition you may be interested in the following NF2 clinical research studies

Neurofibromatosis Type 2 Associated Color Vision Anomalies and Birth Defects
The Ohio State University Department of Otolaryngology; Dr. Bradley Welling
Contact Beth Miles-Markley, research assistant to Dr. Welling, at (614)366-9244 or by email at This e-mail address is being protected from spambots. You need JavaScript enabled to view it

The purpose of this study is to determine the frequency of birth defects and miscarriages in patient with NF2 and determine the frequency of color blindness in NF2 patients.  All persons with NF2 greater than 18 years of age are welcome to participate. Click HERE for more information

A Prospective Natural History Study of Patients with NF2
National Institute of Neurological Disorders and Stroke, Bethesda, MD
Study contact:  Ashok R. Asthagiri, M.D.,
Telephone: (301) 496-2921
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

The purpose of this study is to follow patients who have a diagnosis with NF2 over time through biannual research visits and MRI scans.  The goal is to learn about NF2 tumor development and progression over time.  This study is open to those with a diagnosis of NF2 between the ages of 8 and 75.

 
ABI Research
Massachusetts General Hospital, Boston, Massachusetts
Daniel J. Lee, M.D., FACS
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

The ABI Research Team hopes to learn more about how ABI works to help provide hearing sensations for patients who have received the device because of damaged or absent hearing nerves as a result of NF2.  Please see the following website about what research opportunities are being offered: http://harvardabi.org/harvardabi_researchforms.htm
 

NF2  Natural History Consortium Study
House Ear Institute, Los Angeles, California
Contact:  Shauna Duke at (213) 273-8008
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

The purpose of the study is to follow the natural history of all tumors related to NF2.
To participate in the study, the NF2 diagnosis has to have been made on or after January 1, 1993. You must have at least one untreated acoustic neuroma, meningioma or spinal schwannoma which will remain untreated for the next 12 months.