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Patient Information Brochures PDF Print E-mail

 

About Neurofibromatosis 1
A new brochure updated by our Clinical Care Advisory Board which provides a general overview of/introduction to NF1.

About Neurofibromatosis 1 (English)
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  Acerca de la Neurofibromatosis 1 (Spanish)
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About Neurofibromatosis 2
A new brochure updated by our Clinical Care Advisory Board which provides a general overview of/introduction to NF2.

About Neurofibromatosis 2 (English)
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  Acerca de la Neurofibromatosis 2 (Spanish)
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About Schwannomatosis
A new brochure updated by our Clinical Care Advisory Board which provides a general overview of/introduction to Schwannomatosis.

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Segmental NF: A Guide for Patients
A guide for patients who have been given a diagnosis of segmental neurofibromatosis (NF) or for whom a diagnosis is being considered.

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Neurofibromatosis: Common Questions

Neurofibromatosis: Common Questions
An updated brochure which provides answers to the most commonly asked questions about NF.

Neurofibromatosis: Common Questions (English)
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  Neurofibromatosis: Preguntas Comunes (Spanish)
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The Child with NF1
This brochure is dedicated to the families who live with neurofibromatosis, and their friends who help provide support and encouragement. It is the purpose of this brochure to attempt to place mild or early neurofibromatosis in perspective. To some extent, neurofibromatosis is an unpredictable condition and uncertainty is inevitable. It is hoped, however, that access to accurate medical information will make this uncertainty easier to live with and understand.

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NF1: For Teens
This brochure is directed toward Teens who are living with NF1.  It is designed to help young adults understand some of the challenges they may face and assist in overcoming them. The Foundation also offers an NF Camp and YouthConnect for teenagers living with NF.

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NF1: About Learning Disabilities
The pamphlet provides information about one of the most common manifestations of NF.
   
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NF1: A Guide for Educators
This twelve page booklet is written in question and answer format and provides concise and practical information and recommendations about the cognitive, behavioral and physical manifestations of the disorder. It was developed by Dr. Bruce Korf, a neurologist at Harvard Medical School.

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Transitioning to Adulthood

This brochure has been provided with permission from St. Louis Children's Hospital and is designed to help young adults navigate the transition into adulthood. 


 

 

Funding Opportunities for 
Neurofibromatosis Research and Clinical Care


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Upcoming Events

Sat Feb 11, 2012 @ 2:00pm -
Wisconsin: Tea for NF
Fri Feb 17, 2012 @ 4:00am - 10:00pm
Michigan: Red Wings 50/50 Raffle
Sat Feb 18, 2012 @ 8:00pm -
Arizona: CTF Benefit Concert - (X Factor) TORA WOLOSHIN
Sat Feb 25, 2012 @10:00am - 02:00pm
Arizona: Spring For A Cure
Sat Mar 03, 2012 @ 7:00pm -
NJ: Coffeehouse for a Cure
Sun Mar 04, 2012 @ 3:00pm -
NY: CTF Night with the NY Islanders

Racing 4 Research Logo
Fuel The Cure


NF Walk
Every step makes a difference


NF Endurance Logo


NF Camp

 
List of Events


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