The Children’s Tumor Foundation NF Endurance Team gives participants the opportunity to run, bike, or swim in endurance events across the country. Get a guaranteed spot in premier and often sold-out races, participate in running or cycling events around the world, take on a new challenge with an obstacle course or triathlon…you can even “Choose Your Own Challenge” and pick any adventure you’d like to tackle to benefit CTF. For more information, contact us at nfendurance@ctf.org
NF Endurance
NF affects 1 in every 2,000 births
NF refers to genetic disorders that cause tumors to grow on nerves throughout the body. NF includes all forms of neurofibromatosis and schwannomatosis and affects about 4 million people worldwide. Anyone can be born with NF, and it affects everyone differently. There is no cure yet.
1
FDA-approved Drug for NF, and more on the horizon
Koselugo (selumetinib) is the first FDA-approved drug for NF. CTF-funded research paved the way to this drug approval, and we are working for more approved drugs for all types of NF!
3X
the number of NF Clinical Trials in the past 10 years
There are currently 67 active clinical trials for NF – three times the number of trials than just ten years ago!
45
years of funding NF research
The Children’s Tumor Foundation was founded 45 years ago as the first grassroots organization to support patients with all types of NF.
11,000
have joined the NF Registry
The NF Registry is a secure website where people with NF can take an active role in the search for better treatments. Participating is easy and makes a difference!
20,000
patients each year visit the NF Clinic Network
The NF Clinic Network (NFCN) is the first nationwide network dedicated to improving clinical care and establishing best practices for treating individuals with NF.
Find an event
Find a Participant/Team
Why you should get involved
NF Heroes
Get to know NF Heroes - individuals living with NF - their stories will push you across the finish line
Earn Incentives
Earn a variety of fun prizes when you reach fundraising milestones
Other ways to support
Advocate
Your voice has the power to impact public policy and promote action to find a cure for NF.
Make a Donation
With your help, we can continue to fund critical research and one day find a cure.
Raise Awareness
Help us make sure the world knows about NF and sees the people who live with it.
