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NF Endurance offers runners and walkers the opportunity to conquer the challenge of a marathon or half marathon and make a difference in the lives of the more than two million children and adults who live with neurofibromatosis. Our staff provides encouragement, support and training advice to help you reach your distance goals one mile at a time. |
Nathalie and her family have been active supporters the Children’s Tumor Foundation. This entry was written by Nathalie’s brother, Matt.
Nathalie Trytell, beloved sister, daughter, spouse and friend, passed away March 4, 2011 at 32 years old. Her family has suffered a tragic and painful loss but remain in awe of Nathalie’s incredible strength and courage in fighting NF2 for over 17 years. Her family is planning a memorial service to celebrate her life.
Despite everything she endured, Nathalie had so much love surrounding her in life which is what kept her fighting. Nathalie lived her life to the fullest with[…]
Completing 50 marathons was a goal I set three years ago. I thought this kind of commitment and effort would demonstrate my strong desire to raise money for treatments and a cure for NF. I wanted “to be the change I wish to see in the world.” I have been raising money as a member of the NF Endurance team since 2000. (This was back when we were wearing green running singlets instead of the sporty, sleek, neon yellow ones we have now.) I needed to raise the bar higher to keep my donors attention and interest. I took a[…]
Tony taking a break during the run.
Tony Mixon, a long time NF Endurance team member, has undertaken the run of his lifetime. He is close to finishing a 360 mile run from Jacksonville Beach to Miami Beach! Tony shared this about his own journey with NF via the Facebook page dedicated to his run.
“… My first symptoms/problems began in 1988. I suffered from extreme headaches and dizziness. Upon visiting many doctors and undergoing numerous tests it was determined that I had a very large brain tumor. After 2 surgeries the majority… of the tumor was removed but not[…]
All of us here at the NF Endurance office would like to ask you to keep NFE team member Sarah Johnson in your thoughts this week. Sarah is preparing to undergo emergency surgery to remove a tumor at the base of her skull at 1 PM today. Her family says her spirits remain high. Sarah ran the Long Beach Marathon and the San Diego Marathon with us last year and raised over $10,000 for NF research. Her neurosurgeon is optimistic expects Sarah to make a full recovery and be able to run marathons again.
Sarah’s family is collecting stories, jokes,[…]
Item of the Week: BROOKS Infinity Headband. Infiniti Headband $14.00 Not done with your Christmas shopping for your favorite runner yet? This Brooks Infiniti Headband is perfect now that the temperatures are getting colder. It is a bright and comfortable headband with the NF Endurance logo over the left ear. The headband also has reflective material on the back to make runners more visible in low light conditions. BUY NOW DID YOU KNOW: Our prices for Brooks products are comparable to the price you would pay at most stores. The only difference is our products have the NF Endurance logo[…]
