The NF Forum is a weekend-long patient and family support meeting open to all people living with NF and their families. NF Forum attendees learn about the latest medical advancements in neurofibromatosis, get practical advice on NF-related issues, and learn about resources provided by the Children's Tumor Foundation.
The NF Forum also offers many opportunities for individuals and families to connect through social groups, activities for children, or informal gatherings over meals. It is anticipated thatmore than 200 people locally and nationally will attend this year's Forum.
- Unite patients and families with the best NF physicians in the world in order to hear the message of hope that effective treatments for neurofibromatosis will eventually be found.
- Provide presentations by prominent NF physicians to discuss the latest diagnostics, clinical trials, and management options, while giving patients the opportunity to discuss questions or concerns.
- Provide two tracks of small group sessions specific to the different forms of NF, one for NF1 and one for NF2 and schwannomatosis, so that all participants may share experiences and get practical advice from top physicians and counselors on issues that are of particular interest to them.
About the concurrent meetings
For the second time the NF Forum and NF Conference, two pre-eminent events serving the NF community will be held adjacent to each other. This will provide a powerful new dimension to both gatherings, as researchers and clinicians will see a human face on the disorder they are trying to cure, and patients will meet the dedicated individuals striving to achieve the treatments they so urgently desire.
If you have any questions, concerns or need further assistance please email Traceann Adams at firstname.lastname@example.org.
REGISTRATION OPENS MARCH 3, 2014