Participate In Research

The Foundation supports many clinical trial centers throughout the country and has relationships with virtually all organizations performing clinical trials in neurofibromatosis (NF) around the world. For a comprehensive listing of clinical trials in NF1, NF2, and scwhannomatosis in the United States please click here. For a listing of clinical trials in Europe please click here. If you have questions about whether a trial may be right for you or a loved one please contact CTF's Clinic Coordinator Pamela Knight at or 212.344.6633 ext. 8555.

Also, CTF recently launched the NF Registry, the purpose of which is to find people who may be eligible for clinical trials or other research studies being conducted in the field of neurofibromatosis, and to determine the commonality of specific NF characteristics. Please visit to enter your information.

Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633