IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his left eye. If you have ever met this little ball of energy, you would not know that he has NF. He is too busy running, laughing, and playing with his big brother.

It is because of him and other children like him affected by NF that we are Racing4Research. Our goal is $6,500.

Neurofibromatosis is a condition that affects approximately 1 in 3,000 people. It is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF can cause tumors, cancer, hearing loss, learning disabilities, epilepsy, bone deformities, vision impairment and chronic pain. There is no cure...YET!

Please help us reach and exceed this goal! Thank you in advance for your generous support!

DONATE TO TYLER

Meet Our R4R NF Heroes

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CA - Denelle Pritchard

CA - Denelle Pritchard

My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They we...

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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MA - Molly McBryan

MA - Molly McBryan

Molly was diagnosed with NF1 at 18 months. Doctors have found a tumor on Molly's optic nerve, a si...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

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AK - Holly Beeman

AK - Holly Beeman

Holly, is the first in our family with NF1.  The first time our family heard of Neurofibromat...

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NY - Kevin Martin

NY - Kevin Martin

My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lai...

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MI - Nicolas Cohoon

MI - Nicolas Cohoon

When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were...

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KS - Jeffrey Owen Hanson

KS - Jeffrey Owen Hanson

Jeffrey Owen Hanson is a philanthropic artist from Overland Park, KS. Visually impaired from an op...

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AZ - Kyle Oden

AZ - Kyle Oden

Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thou...

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MI - Izzy Mick

MI - Izzy Mick

Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her bo...

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NC - Noah Roberts

NC - Noah Roberts

Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah ha...

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GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call...

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NY - Bailey Gribben

NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neu...

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GA - Katherine Thompson

GA - Katherine Thompson

I want to thank everyone for visiting this site to become more educated regarding neurofibromatos...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. S...

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Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org