IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his left eye. If you have ever met this little ball of energy, you would not know that he has NF. He is too busy running, laughing, and playing with his big brother.

It is because of him and other children like him affected by NF that we are Racing4Research. Our goal is $6,500.

Neurofibromatosis is a condition that affects approximately 1 in 3,000 people. It is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF can cause tumors, cancer, hearing loss, learning disabilities, epilepsy, bone deformities, vision impairment and chronic pain. There is no cure...YET!

Please help us reach and exceed this goal! Thank you in advance for your generous support!

DONATE TO TYLER

Meet Our R4R NF Heroes

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CA - Blake Robinson

CA - Blake Robinson

For the first year of his life, everything seemed normal. Blake was born at term via c-section, only...

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SC - Nicholas Biering

SC - Nicholas Biering

If you are reading this page, you probably already know who I am, but just in case…. My n...

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UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects...

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NY - Bailey Gribben

NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neu...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

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MI - Izzy Mick

MI - Izzy Mick

Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her bo...

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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GA - Delaney Watts

GA - Delaney Watts

I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you w...

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VA - Evan Perdew

VA - Evan Perdew

Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neuro...

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NY - Kevin Martin

NY - Kevin Martin

My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lai...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They we...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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CA - Madison Branaugh

CA - Madison Branaugh

Neurofibromatosis is no fun. I am so thankful of your support to help us find the cure. I cannot exp...

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NC - Noah Roberts

NC - Noah Roberts

Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah ha...

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IL - Tyler Neppl

IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumo...

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IN - Jesse Markland

IN - Jesse Markland

Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-l...

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AZ - Kyle Oden

AZ - Kyle Oden

Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thou...

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Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org