IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his left eye. If you have ever met this little ball of energy, you would not know that he has NF. He is too busy running, laughing, and playing with his big brother.

It is because of him and other children like him affected by NF that we are Racing4Research. Our goal is $6,500.

Neurofibromatosis is a condition that affects approximately 1 in 3,000 people. It is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF can cause tumors, cancer, hearing loss, learning disabilities, epilepsy, bone deformities, vision impairment and chronic pain. There is no cure...YET!

Please help us reach and exceed this goal! Thank you in advance for your generous support!

DONATE TO TYLER

Meet Our R4R NF Heroes

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CA - Brenda McCool

CA - Brenda McCool

Join Brenda Paola McCool in her quest to find a cure for neurofibromatosis (NF). All donations wil...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

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CA - Andrew Vigil

CA - Andrew Vigil

Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They we...

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NC - Noah Roberts

NC - Noah Roberts

Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah ha...

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SC - Nicholas Biering

SC - Nicholas Biering

If you are reading this page, you probably already know who I am, but just in case…. My n...

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IN - Jesse Markland

IN - Jesse Markland

Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-l...

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NY - Julia Perfetti

NY - Julia Perfetti

Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. J...

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VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He ha...

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GA - Jack Burke

GA - Jack Burke

Jack is a kind, energetic, inquisitive, adorable 8-year-old who also has NF. He is a fantastic big b...

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PA - Michael Zazula

PA - Michael Zazula

Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of ...

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GA - Delaney Watts

GA - Delaney Watts

I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you w...

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MI - Nicolas Cohoon

MI - Nicolas Cohoon

When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were...

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IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-la...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

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Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org