MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good, the bad and the ugly. The plexi keeps her from being able to walk on her own. The ugly came in January 2009 when the plexi which has caused damage to her kidney and bladder required a bypass of bladder. Unfortunately, the plexi continues to grow at a fast pace. Our prayers are to keep the plexi at a stand-still or slow pace to enable the research to catch up to make it melt away.

Nicole has a wonderful support system with family and friends. She attends Holy Child school, where she enjoys learning, singing, dancing, and playing with her friends. When she is not in school, she enjoys playing with her dolls, shopping and watching movies. Her Mickey Mouse goes everywhere we go, including countless doctor appointments and every MRI, dinner, travel, church and school.

Nicole's brother has taken his quest to teach the students of the Seckman middle school about NF. They are working on fundraisers for helping find a cure to NF. Our team is also joined by friends and family who are helping our family as we race to find a cure to give Nicole the ability to walk and be independent.

DONATE TO NICOLE

Meet Our R4R NF Heroes

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VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He ha...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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NY - Bailey Gribben

NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neu...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

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UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects...

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MA - Dylan Thompson

MA - Dylan Thompson

Dylan is 10 years old and has neurofibromatosis. He has suffered significant visual losses such as b...

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MA - Molly McBryan

MA - Molly McBryan

Molly was diagnosed with NF1 at 18 months. Doctors have found a tumor on Molly's optic nerve, a si...

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FL - Lilly Ann Brooks

FL - Lilly Ann Brooks

Thank you for supporting the Children's Tumor Foundation. Your contribution is greatly appreciated...

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CA - Andrew Vigil

CA - Andrew Vigil

Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and...

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AZ - Kyle Oden

AZ - Kyle Oden

Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thou...

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CA - Denelle Pritchard

CA - Denelle Pritchard

My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since...

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IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café...

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PA - Michael Zazula

PA - Michael Zazula

Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of ...

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MI - Nicolas Cohoon

MI - Nicolas Cohoon

When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were...

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MO - Nicole Riley

MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthda...

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CA - Blake Robinson

CA - Blake Robinson

For the first year of his life, everything seemed normal. Blake was born at term via c-section, only...

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Children's Tumor Foundation
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New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org