MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good, the bad and the ugly. The plexi keeps her from being able to walk on her own. The ugly came in January 2009 when the plexi which has caused damage to her kidney and bladder required a bypass of bladder. Unfortunately, the plexi continues to grow at a fast pace. Our prayers are to keep the plexi at a stand-still or slow pace to enable the research to catch up to make it melt away.

Nicole has a wonderful support system with family and friends. She attends Holy Child school, where she enjoys learning, singing, dancing, and playing with her friends. When she is not in school, she enjoys playing with her dolls, shopping and watching movies. Her Mickey Mouse goes everywhere we go, including countless doctor appointments and every MRI, dinner, travel, church and school.

Nicole's brother has taken his quest to teach the students of the Seckman middle school about NF. They are working on fundraisers for helping find a cure to NF. Our team is also joined by friends and family who are helping our family as we race to find a cure to give Nicole the ability to walk and be independent.

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Meet Our R4R NF Heroes

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café...

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CA - Brandon Tibbets

CA - Brandon Tibbets

Brandon Tibbets was born with NF 1. He has a bone deformity in his leg due to his NF. His bone fract...

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KS - Jeffrey Owen Hanson

KS - Jeffrey Owen Hanson

Jeffrey Owen Hanson is a philanthropic artist from Overland Park, KS. Visually impaired from an op...

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GA - Katherine Thompson

GA - Katherine Thompson

I want to thank everyone for visiting this site to become more educated regarding neurofibromatos...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

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MO - Nicole Riley

MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthda...

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MI - Izzy Mick

MI - Izzy Mick

Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her bo...

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NY - Julia Perfetti

NY - Julia Perfetti

Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. J...

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SC - Nicholas Biering

SC - Nicholas Biering

If you are reading this page, you probably already know who I am, but just in case…. My n...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. S...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

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NC - Noah Roberts

NC - Noah Roberts

Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah ha...

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GA - Jack Burke

GA - Jack Burke

Jack is a kind, energetic, inquisitive, adorable 8-year-old who also has NF. He is a fantastic big b...

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CA - Madison Branaugh

CA - Madison Branaugh

Neurofibromatosis is no fun. I am so thankful of your support to help us find the cure. I cannot exp...

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GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call...

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