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I have tumors on my optic nerves, brain stem and now on my upper spine. The doctors tell me that I am stable and doing well. School has been very hard lately but with my moms help in getting me what I need I know I will do well. NF is not stopping me in what I love to do, which is playing baseball, riding my bike, becoming a video game master, or reenacting my favorite NASCAR race! Thank you for your support and helping me and other NF Hero's fight to end Neurofibromatosis! |
OH - Amie PetrasI was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctor... MORE... |
CA - Madison Branaugh Madison is 2 years old and has NF1 due to a random genetic mutation that hapened during conception. We recently found ou... MORE... |
VA - Evan Perdew Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neurofibroma in his right... MORE... |
CA - Dakota Anderson Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. She was officially di... MORE... |
AZ - Kyle Oden Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey... MORE... |
DE - Isabelle Moulsdale We have two beautiful children, Tristan (5) and Isabelle (3). About 6 months after Isabelle was born, we discovered tha... MORE... |
MA - Dylan Thompson Dylan is 9 years old and has neurofibromatosis. In the past, he has suffered significant visual losses such as his depth... MORE... |
GA - Jocelyn Cantrell This website is in honor of my beautiful daughter, Jocelyn. At the age of four she was diagnosed with neurofibromatosis... MORE... |
SD - Auston Ehrmantraut Auston Ehrmantraut was diagnosed with NF1 shortly after birth. Since he was a baby, he's been doctoring at Mayo Clin... MORE... |
NY - Andrew Snyder I had never heard of neurofibromatosis until my sweet grandson, baby Andrew, was diagnosed last year with NF1. Two fa... MORE... |
GA - Jack Burke Jack is a kind, energetic, inquisitive, adorable five year old who also has NF. He is a fantastic big brother, and loves... MORE... |
FL - Lilly Ann Brooks Thank you for coming to Lilly Ann’s NF Hero web page! We posted this for one reason- to raise money for a cure ... MORE... |
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Hi, my name is Andrew and I was diagnosed with 
