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FL - Lilly Ann Brooks![]() Thank you for coming to Lilly Ann’s NF Hero web page! We posted this for one reason- to raise money for a cure ... MORE... |
GA - Katherine Thompson![]() I want to thank everyone for visiting this site to become more educated regarding neurofibromatosis (NF). Just over t... MORE... |
AL - Mariska Wallis![]() Hi my name is Kristy and I'm raising funds for NF. The reason being my 3 year old god-daughter was diagnosed with&n... MORE... |
OH - Bryce Gossard![]() Wow, what a great day we had on May 23, 2010 at the Family Fun Day and Car Show on behalf of Bryce in Kenton, Ohio. Ther... MORE... |
SC - Shanna Byrd![]() I was diagnosed with NF2 in 1990. I have had two brain surgeries and 2 spinal surgeries to date. I lost my hearing ... MORE... |
TX - Kaleb Grigg![]() My name Is Kaleb and I was diagnosed with NF1 at the early age of 10 months old. When I was born my parents noticed a... MORE... |
WI - Owen Polak![]() Owen has NF. NF has has challenged Owen every day since he was 6 months old. Owen is currently 9 years old. For eight ... MORE... |
MI - Izzy Mick![]() Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her body, at any time. It ... MORE... |
NY - Julia Perfetti![]() Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
NE - Jena Lucas![]() When Jena was born we noticed several birth marks. At the time there was no reliable genetic testing to confirm or deny ... MORE... |
CA - Brenda McCool![]() No one could have imagined that anything was wrong when Brenda was born. She was such a beautiful baby. She grew and gre... MORE... |
NY - Kevin Martin![]() My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots on my body. ... MORE... |
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