Madison is 2 years old and has NF1 due to a random genetic mutation that hapened during conception. We recently found out that she has a pretty severe plexiform. Of course we always hear that we will just have to wait and see...This needs to change. We need to find a cure for NF and we need to find it now. One in 3,000 people are born with this. Isn't it time to make a change with research funding to help deal with this condition? I believe it is. Please help Madison and the numerous others. Please do what you can by donating and spreading the word on what NF is.
Thank you, Madison's Mommy, Karen
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