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Our NF Heroes
CA - Rob Schafer Thank you for choosing to visit my site as many of the other NF heros' stories are quite inspiring. I started thi... MORE... |
MO - Nicole Riley Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good... MORE... |
WA - Xavier CompoMy son was just recently diagnosed with NF1, for two years we have been trying to figure out what has been going on w... MORE... |
MI - Nicolas Cohoon When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic... MORE... |
UT - Lynne Stockman My name is Lynne Stockman from Salt Lake City, Utah and I am 49 years old and was born with NF1. I am the only member of... MORE... |
MO - Mason Lockmiller Mason has been sick since he was 3 weeks old but did not show any signs of NF so no one asked. He saw so many doctors an... MORE... |
NJ - Julionna Lawrence My daughter Julionna has NF1. Neurofibromatosis is a tumor disorder that children can be born with. Julionna was diag... MORE... |
NY - Brianna Worden Hello, and thank you for visiting our page!! Brianna is once again on a mission to help CTF Fuel the Cure for Neurofi... MORE... |
NY - Julia Perfetti Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
VA - Cameron Arnette Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He has attended the Dayto... MORE... |
CA - Andrew Vigil Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and NF has affected me ... MORE... |
SC - Nicholas Biering If you are reading this page, you probably already know who I am, but just in case…. My name is Nicholas Bier... MORE... |
