 On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (two at that time) Dylan was diagnosed with neurofibromatosis. Dylan has tumors on his brainstem and spinal cord. We have been knocked off of our feet with this diagnosis, it has been heartbreaking, more pain then we have ever felt. NF strikes 1 in 3,000 people, there is no cure and not a lot of treatment. It is a genetic disorder that causes tumors to grow wherever there is a nerve. We have decided to pick ourselves up and move forward and do everything we can to help spread awareness, fund drug research and for once put an end to NF. All of the money we raise will go directly to the Childrens Tumor Foundation to fund NF research. We Thank you all from the bottom of our hearts for joining us and being part of our journey!
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