I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you wish you could forget. Unfortunately, that won't happen, so I face each day with the hope that Delaney will be ok. That she won't get worse, she won't develop any more tumors, that she won't be different from other kids. That through fundraising, I am one step closer to helping find a cure and to spread awareness of a disease that i had never heard of before and most people haven't either.

Delaney was 3 when she was diagnosed with NF type 1. Although, Delaney has been really lucky so far, there is a constant question as to how long will she be lucky. Delaney, has only had 1 tumor removed and she doesn't have alot of the other difficulties that go along with NF. She realizes already at the age of 7, she is different. She is different from the other healthy kids at school and different from her friends that she has met through CTF. Delaney goes through yearly MRIs which at this point she think is the norm. She is not yet aware of the other things that go along with being a mom of a child with NF. The constant counting of everything. Every ache & pain, is counted & kept track of, just in case it may be a tumor. I prefer her not to know about that aspect, she would probably use it to get out of cleaning her room. She deserve to be a kid who is happy and enjoying life, not worry her future with NF. Every year we raise money for CTF, we are one step closer to making that happen not just for Delaney but for every child affected by NF. We are blessed with so many people who want to help and learn about NF. And with NF affecting 1 in 3000 children, we are lucky to be a voice about something most don't know about. Thank you everyone who helps us raise money get one step closer to make sure Delaney and her friends are healthy.

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