GA - Jocelyn Cantrell PDF Print E-mail


This website is in honor of my beautiful daughter, Jocelyn. At the age of four she was diagnosed with neurofibromatosis. NF causes tumors to grow on your nerve endings. It can cause deafness, blindness, and a whole host of other problems. It affects 1 in 3,000 births and knows no ethnic or gender boundries. Right now, Jocelyn battles with an tumor on her optic nerve that threatens to take away her vision in her left eye. I think the worst part about NF is the 'wait and see'. I don't know how her life will play out. There's no way I can plan or prepare for what the future holds for us. That is one of the reasons I feel so strongly about research and awareness. For every dollar donated, we are one step closer to finding a cure! We are one step closer to being able to help Jocelyn and so many others out there living with the uncertainty of this disease. Our sincere thanks for your support! Join OUR Team!

 

 

Our NF Heroes

MI - Izzy Mick

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Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her body, at any time. It ...

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IL - Cole Rutter

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My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my...

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AZ - Kyle Oden

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Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey...

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MN - Jacqueline Dunlap

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The Wednesday before Thanksgiving of 2008 was the day we received a call from our daughter’s Pediatrician tell...

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NY - Andrew Snyder

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I had never heard of neurofibromatosis until my sweet grandson, baby Andrew, was diagnosed last year with NF1. Two fa...

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NY - Bailey Gribben

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Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neurological disorder t...

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CA - Blake Robinson

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For the first year of his life, everything seemed normal. Blake was born at term via c-section, only because he was a la...

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WI - Owen Polak

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Owen has NF. NF has has challenged Owen every day since he was 6 months old. Owen is currently 9 years old. For eight ...

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SC - Nicholas Biering

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If you are reading this page, you probably already know who I am, but just in case…. My name is Nicholas Bier...

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MA - Celia LaBarbera

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Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with life! Her family's ...

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NC - Noah Roberts

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Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah had surgery within sev...

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MI - Josiah Abbott

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Josiah A.

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