IL - Tyler Neppl PDF Print E-mail

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his left eye. If you have ever met this little ball of energy, you would not know that he has NF. He is too busy running, laughing, and playing with his big brother.

It is because of him and other children like him affected by NF that we are Racing4Research. Our goal is $6,500.

Neurofibromatosis is a condition that affects approximately 1 in 3,000 people. It is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in the body at any time. NF can cause tumors, cancer, hearing loss, learning disabilities, epilepsy, bone deformities, vision impairment and chronic pain. There is no cure...YET!

Please help us reach and exceed this goal! Thank you in advance for your generous support!

DONATE TO TYLER

 

Our NF Heroes

FL - Chris Burrell

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Hi my name is Chris Burrell. I am 23 years old and I was diagnosed with NF. What is NF? NF stands for Neurofibromatos...

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MO - Nicole Riley

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Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good...

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CO - Sawyer Devlin Ray

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Our little man, Sawyer, was officially diagnosed with NF1 when he was 8 months old, though we had been pretty sure of th...

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GA - Katherine Thompson

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I want to thank everyone for visiting this site to become more educated regarding neurofibromatosis (NF). Just over t...

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SC - Nicholas Biering

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If you are reading this page, you probably already know who I am, but just in case…. My name is Nicholas Bier...

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IL - Cole Rutter

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My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my...

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NY - Julia Perfetti

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Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny...

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CA - Blake Robinson

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For the first year of his life, everything seemed normal. Blake was born at term via c-section, only because he was a la...

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NY - Andrew Snyder

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I had never heard of neurofibromatosis until my sweet grandson, baby Andrew, was diagnosed last year with NF1. Two fa...

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IN - Gabriel Helpingstine

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Gabriel was diagnosed with neurofibromatosis (Type 1) at the age of two. This disorder can cause tumors to grow ...

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NC - Ethan Wray

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Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not j...

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GA - Jocelyn Driscoll

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Hi my name is Jocelyn Driscoll. I was diagnosed with Neurofibromatosis Type 1 at age 3. Neurofibromatosis is a genetic d...

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