Dylan is 9 years old and has neurofibromatosis. In the past, he has suffered significant visual losses such as his depth perception, binocular, and peripheral vision. He has had surgery for this but they were unable to restore his vision. He will require 2-3 more surgeries just to maintain alignment. Most recently he lost the auditory nerve on the right side and is now half deaf. Even with his good ear, his word recognition is very poor making it difficult to understand speech in adverse settings. These are all nerve related and permenant. He struggles daily to over come many obstacles including muscular, nutritional and neurological issues as well. Some of those issues are causing structural problems. He has scapular winging in both shoulders causing his chest wall to sink in and become deformed. Dylan is part of the Racing 4 Research Team at The Children's Tumor Foundation and is raising awareness and money to help find a cure for Neurofibromatosis. He needs your help and together we can help thousands of kids who are affected by NF! Although money can't buy happiness, it can bring hope and with hope, all things are possible!! Thank you for all the continued love and support for our little guy! XOXO

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