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Our NF Heroes
MA - Dylan Thompson Dylan is 9 years old and has neurofibromatosis. In the past, he has suffered significant visual losses such as his depth... MORE... |
SC - Shanna Byrd I was diagnosed with NF2 in 1990. I have had two brain surgeries and 2 spinal surgeries to date. I lost my hearing ... MORE... |
GA - Delaney Watts I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you wish you could forget... MORE... |
CA - Brandon Tibbets Brandon Tibbets was born with NF 1. He has a bone deformity in his leg due to his NF. His bone fractured on its own when... MORE... |
NE - John Schafer Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anytime. It affects 1 in... MORE... |
OR - Zachary Odegard I am 15 years old and I was diagnosed with NF 1 when I was 3 years old. Neurofibromatosis is a genetic disorder that... MORE... |
SD - Auston Ehrmantraut Auston Ehrmantraut was diagnosed with NF1 shortly after birth. Since he was a baby, he's been doctoring at Mayo Clin... MORE... |
NY - Julia Perfetti Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
AZ - Kyle Oden Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey... MORE... |
AL - Mariska Wallis Hi my name is Kristy and I'm raising funds for NF. The reason being my 3 year old god-daughter was diagnosed with&n... MORE... |
NC - Ethan Wray Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not j... MORE... |
MN - Jacqueline Dunlap The Wednesday before Thanksgiving of 2008 was the day we received a call from our daughter’s Pediatrician tell... MORE... |
