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When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic's 4 month pediatrician appointment was the first time I heard the words Cafe' Au Lait Spots. The words didn't sound serious, but as the months continued, I learned differently. At 12 months old Nic was diagnosed with Neurofibromatosis (NF). Never in all the thoughts of being blessed with this child would I think he would have a genetic disorder where tumors could form anywhere in or on his body. Never did I think that he would have developmental delays. Never did I think that my little baby would have to be subjected to MRI's and doctor appointments as a "normal" for his life. Nic is 2 years old and has endured PT and OT since he was 11 months due to low muscle tone in his core. He has bilateral thickening behind his eyes that have to be watched yearly to make sure that they don't increase in size. He currently has some slight bowing in his leg that we are in the process of getting looked at to make sure he doesn't have future issues. He also has a 9 degree curvature in his spine, which also has to be monitored to make sure that it does not worsen. I wanted to create this page for donations in honor of Nic. Nic is amazing little guy with a great spirit. We are grateful for all the donations that we have received in the past and are overwhelmed by the outpouring of love that we receive daily from people who meet and fall in love with Nic. Any amount of donation is welcome because you never know which dollar is going to find the CURE FOR NF. If you would like more information about NF please visit www.ctf.org. |
