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NE - Skylar Folkers![]() Skylar was diagnosed with neurofibromatosis type 1 at the age of five, along with her NF1, she has been diagnosed with A... MORE... |
WI - Owen Polak![]() Owen has NF. NF has has challenged Owen every day since he was 6 months old. Owen is currently 9 years old. For eight ... MORE... |
IL - Tyler Neppl![]() Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he wa... MORE... |
NV - Taylor & Kirsten Halbert![]() Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They were diagnosed when th... MORE... |
CA - Dakota Anderson![]() Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. She was officially di... MORE... |
CO - Sawyer Devlin Ray![]() Our little man, Sawyer, was officially diagnosed with NF1 when he was 8 months old, though we had been pretty sure of th... MORE... |
CA - Blake Robinson![]() For the first year of his life, everything seemed normal. Blake was born at term via c-section, only because he was a la... MORE... |
SC - Shanna Byrd![]() I was diagnosed with NF2 in 1990. I have had two brain surgeries and 2 spinal surgeries to date. I lost my hearing ... MORE... |
NY - Andrew Snyder![]() I had never heard of neurofibromatosis until my sweet grandson, baby Andrew, was diagnosed last year with NF1. Two fa... MORE... |
CA - Andrew Vigil![]() Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and NF has affected me ... MORE... |
AL - James Gerrell![]() My son James was first diagnosed with NF1 at the age of 4. He has lived with this for the past 24 years. He has had seve... MORE... |
AZ - Kyle Oden![]() Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey... MORE... |
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