MO - Mason Lockmiller PDF Print E-mail

Mason has been sick since he was 3 weeks old but did not show any signs of NF so no one asked. He saw so many doctors and had numerous tests done and no one could figure out what was wrong with him. When he was 6 and a half, we found Trudy Scott and she gave us the okay to have his first MRI. It took 3 weeks to get the results back and when we did, it changed our lives forever! Since then we have traveled everywhere to see every doctor in the book hoping that Mason would be ok. Instead what we have found is a series of things inside and outside of Masons little body. He was finally diagnosed with NF1. Mason has a Tumor in his Brain, a Mutated Gene, ADHD, Neurofibromas, Plexiform Neurofibromas, Learning Problems, Lisch Nodules, Optic Glioma, Bone Problems, Vision Problems, and numerous other things. With all of this going on, Mason still is the happiest kid ever. He loves every one which makes it better for him when he has to see the doctors. Mason has three older sisters that do not have NF1 and they try to understand everything going on with him but they are also still pretty young, and do not fully understand. Mason goes to school in a class of 8 students. He can not be in a regular class due to the other students not understanding him. So we want to help raise money for research, a cure, a treatment, and a way to educate not only adults but children too. I think there is a lot more information on NF that we all can still learn. So with a big heart please help us put an END to all NF! 

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