Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not just with a cold or the flu. Those are managable with some warm soup and lots of TLC. No, this illness is unfamiliar and one that has no cure. Neurofibromatosis(NF), was not in our vocabulary until March 2009. Our hero Ethan was 5 years old. As a family, we have embraced Ethan's NF, without hesitation. We read what we can and talk to Ethan about what is going on in his life. His sisters each have braclets that they wear and can tell others about their big brother. Ethan is our NF Hero and we hope that he can be yours too. He takes this disorder in stride, it does not and will not define who he is or who he will become. It is because of his NF that Ethan has the determination to push harder and go faster. We feel blessed and count our blessings each day. There are countless others who struggle each day because of NF's affects. Children who have already undergone multiple surgeries to remove debilitating tumors. Adults who have just learned of this disorder for the first time and need assurance and guidance in dealing with all its affects. Please consider donating to this wonderful cause. All funds raised go toward research. Research in critical in finding a CURE. Thank you so much!

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