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DE - Isabelle Moulsdale![]() We have two beautiful children, Tristan (5) and Isabelle (3). About 6 months after Isabelle was born, we discovered tha... MORE... |
OR - Zachary Odegard![]() I am 15 years old and I was diagnosed with NF 1 when I was 3 years old. Neurofibromatosis is a genetic disorder that... MORE... |
MI - Nicolas Cohoon![]() When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic... MORE... |
FL - Dylan Brain![]() On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (two at that time) Dyla... MORE... |
NY - Kevin Martin![]() My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots on my body. ... MORE... |
NJ - Julionna Lawrence![]() My daughter Julionna has NF1. Neurofibromatosis is a tumor disorder that children can be born with. Julionna was diag... MORE... |
AZ - Kyle Oden![]() Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey... MORE... |
FL - Chris Burrell![]() Hi my name is Chris Burrell. I am 23 years old and I was diagnosed with NF. What is NF? NF stands for Neurofibromatos... MORE... |
NY - Julia Perfetti![]() Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
UT - Kala Schvaneveldt![]() My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type ... MORE... |
OH - Amie PetrasI was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctor... MORE... |
GA - Katelyn Watkins![]() My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call me. They are Kate-K... MORE... |
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