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Our NF Heroes
IL - Rosie Colucci Rosie is just one of Illinois’ NF Heroes...but she is the reason our family and so many who know her are showing their... MORE... |
NY - Julia Perfetti Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
AL - James Gerrell My son James was first diagnosed with NF1 at the age of 4. He has lived with this for the past 24 years. He has had seve... MORE... |
UT - Kala Schvaneveldt My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type ... MORE... |
NV - Cailin Devine Developed by the Children’s Tumor Foundation, Racing4Research raises money to benefit NF research through corpo... MORE... |
OH - Bryce Gossard Wow, what a great day we had on May 23, 2010 at the Family Fun Day and Car Show on behalf of Bryce in Kenton, Ohio. Ther... MORE... |
NV - Taylor & Kirsten Halbert Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They were diagnosed when th... MORE... |
NE - Jena Lucas When Jena was born we noticed several birth marks. At the time there was no reliable genetic testing to confirm or deny ... MORE... |
GA - Delaney Watts I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you wish you could forget... MORE... |
FL - Chris Burrell Hi my name is Chris Burrell. I am 23 years old and I was diagnosed with NF. What is NF? NF stands for Neurofibromatos... MORE... |
CA - Madison Branaugh Madison is 2 years old and has NF1 due to a random genetic mutation that hapened during conception. We recently found ou... MORE... |
AZ - Kyle Oden Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy ey... MORE... |
