My daughter Julionna has NF1. Neurofibromatosis is a tumor disorder that children can be born with. Julionna was diagnosed at the age of 18 months by a pediatric neurologist. She has been seen by a team of doctors at Children's Hospital in Philadelphia ever since. Julionna was only two when she had her first MRI. The MRIs were done to look for optic gliomas on the optic nerve (this nerve leads to the eye and affects vision). Julionna was then diagnosed with having a glioma( tumor) on her left optic nerve. Since there was an optic glioma found on her left optic nerve she needed MRIs every 6 months, a precautionary measure to make sure that the glioma didn't grow or change in shape or size. Thankfully Julionna is stable and no longer needs an MRI unless we feel something has changed. Along with having MRIs, Julionna follows a team of doctors such as an Opthomologist and Oncologist at the Children's Hospital in Philly. This disease has various stages at different ages and these children need to always be followed to ensure optimal health. This is our goal for our daughter as well as all children affected by NF or children that will be affected by NF in the future. Julionna is now 9 and doing really well. These children need our support, please help be their support system. Sincerely, Shelly, Brian, Julionna & Anthony