At around the age of 3 years old, Kiara was diagnosed with NF. At first we were in denial, but we took the time to understand what we were dealing with. Through many doctors and personal research, we came up with a plan of action. We didn't tell Kiara until the age of 9. Now she understands what is going on in her life to some extent. We are the one of the lucky ones with very little going on in her life, compared to some of the unfortunate parents and children who have to deal with so much more. As you know, with more money, we do more research, and possibly come up with some solutions. We can put someone on the moon, orbit the planet, and talk, email, and text from anywhere on the earth. Let's put some of the money being spent on silly things into something that may changes a child's or families life forever. Don't do it for me, or for Kiara, do it for everyone else. Thanks. In spirit; Allie Alberigo