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I was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctors were aware of neurofibromatosis. Since my diagnosis, I have had two cyberknife radiation treatments to try to save my hearing in both ears, and one spinal surgery. I currently wear hearing aids to help balance the hearing that I have lost.
There isn't a cure for NF, but we are on our way to find one with the help of Children's Tumor Foundation. Please help with even the smallest donation. It will be an important step toward a cure. I sincerely thank you for your consideration. |
