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 Hello! Seth has struggled with painful tumors in his foot for most of his life. We didn't know the tumors were caused by NF until he was 7 years old. Since then, Seth has tried to stay positive and raise awareness about NF and the Children's Tumor Foundation. He is eager to see his name on the CTF race car and help the foundation continue research with his donations so a cure will be found. Seth appreciates all your support!
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WA - Xavier CompoMy son was just recently diagnosed with NF1, for two years we have been trying to figure out what has been going on w... MORE... |
NY - Kevin Martin My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots on my body. ... MORE... |
NC - Noah Roberts Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah had surgery within sev... MORE... |
GA - Katherine Thompson I want to thank everyone for visiting this site to become more educated regarding neurofibromatosis (NF). Just over t... MORE... |
CA - Dakota Anderson Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. She was officially di... MORE... |
IL - Cole Rutter My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my... MORE... |
NC - Ethan Wray Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not j... MORE... |
UT - Kala Schvaneveldt My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type ... MORE... |
CA - Madison Branaugh Madison is 2 years old and has NF1 due to a random genetic mutation that hapened during conception. We recently found ou... MORE... |
CA - Raymond Thomas Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech therapist and dev... MORE... |
MI - Nicolas Cohoon When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic... MORE... |
OH - Bryce Gossard Wow, what a great day we had on May 23, 2010 at the Family Fun Day and Car Show on behalf of Bryce in Kenton, Ohio. Ther... MORE... |
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