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My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type one. I have a tumor on my optic nerve and many cafe-au-lait spots and some plexiform tumors on my body. I also have a learning disability. It is hard for me to learn, but that doesn't stop me from doing my best in school. I am also smaller than most people my age, I love hanging out with my friends and once a year I get to go to a camp for NF kids. I love going there and seeing my friends, it's a great opportunity and I would love to earn enough money for me and my family to be able to go to the race for research and raise money so we can find a cure for neurofibromatosis. I know we can all work together to do this, if you donate money to me, we can all help find a cure for this disorder and help more people with NF. Thanks for all your support.Our NF Heroes
CA - Andrew Vigil Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and NF has affected me ... MORE... |
IL - Rosie Colucci Rosie is just one of Illinois’ NF Heroes...but she is the reason our family and so many who know her are showing their... MORE... |
UT - Lynne Stockman My name is Lynne Stockman from Salt Lake City, Utah and I am 49 years old and was born with NF1. I am the only member of... MORE... |
VA - Evan Perdew Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neurofibroma in his right... MORE... |
NY - Julia Perfetti Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny... MORE... |
OH - Amie PetrasI was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctor... MORE... |
CA - Brenda McCool No one could have imagined that anything was wrong when Brenda was born. She was such a beautiful baby. She grew and gre... MORE... |
TX - Kaleb Grigg My name Is Kaleb and I was diagnosed with NF1 at the early age of 10 months old. When I was born my parents noticed a... MORE... |
GA - Jocelyn Cantrell This website is in honor of my beautiful daughter, Jocelyn. At the age of four she was diagnosed with neurofibromatosis... MORE... |
CO - Sawyer Devlin Ray Our little man, Sawyer, was officially diagnosed with NF1 when he was 8 months old, though we had been pretty sure of th... MORE... |
NJ - Julionna Lawrence My daughter Julionna has NF1. Neurofibromatosis is a tumor disorder that children can be born with. Julionna was diag... MORE... |
NV - Cailin Devine Developed by the Children’s Tumor Foundation, Racing4Research raises money to benefit NF research through corpo... MORE... |
