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 Please go to Evan's CaringBridge page for his story & updates. (http://www.caringbridge.org/visit/evanperdew) |
Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large Our NF Heroes
OR - Zachary Odegard I am 15 years old and I was diagnosed with NF 1 when I was 3 years old. Neurofibromatosis is a genetic disorder that... MORE... |
DE - Isabelle Moulsdale We have two beautiful children, Tristan (5) and Isabelle (3). About 6 months after Isabelle was born, we discovered tha... MORE... |
GA - Katelyn Watkins My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call me. They are Kate-K... MORE... |
NY - Jonathon White My name is Jonathon White, I am 12 years old and I have neurofibromatosis (NF). I live in Staten Island, New Yo... MORE... |
FL - Casey Gibbons Our little girl Casey was diagnosed last year with NF1 at the age of one and a half years old. Since then we have been t... MORE... |
NY - Brianna Worden Hello, and thank you for visiting our page!! Brianna is once again on a mission to help CTF Fuel the Cure for Neurofi... MORE... |
IL - Rosie Colucci Rosie is just one of Illinois’ NF Heroes...but she is the reason our family and so many who know her are showing their... MORE... |
CA - Raymond Thomas Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech therapist and dev... MORE... |
MO - Nicole Riley Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good... MORE... |
OH - Amie PetrasI was first diagnosed with NF2 when I was in high school. At the time, I was seventeen years old and not too many doctor... MORE... |
CA - Rob Schafer Thank you for choosing to visit my site as many of the other NF heros' stories are quite inspiring. I started thi... MORE... |
NV - Taylor & Kirsten Halbert Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They were diagnosed when th... MORE... |
