WA - Xavier Compo PDF Print E-mail

My son was just recently diagnosed with NF1, for two years we have been trying to figure out what has been going on with him. He has had unexplainable itching attacks on the right side of his head neck and top part of his right arm, we still do not know what is causing these episodes. His doctor finally referred him to Children's Hospital in Seattle after I asked him to, I had had enough of not knowing what was going on with him. I am a single mother of three and his brother and younger sister do not understand what is going on with their brother but I am trying to help them as well as try to figure out how to help him with this condition and his other unexplainable condition his father is involved in his life as well he sees him every week.

DONATE TO XAVIER

 

Our NF Heroes

GA - Katelyn Watkins

News image

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call me. They are Kate-K...

MORE...

IL - Rosie Colucci

News image

Rosie is just one of Illinois’ NF Heroes...but she is the reason our family and so many who know her are showing their...

MORE...

FL - Casey Gibbons

News image

Our little girl Casey was diagnosed last year with NF1 at the age of one and a half years old. Since then we have been t...

MORE...

NY - Julia Perfetti

News image

Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny...

MORE...

DE - Isabelle Moulsdale

News image

We have two beautiful children, Tristan (5) and Isabelle (3). About 6 months after Isabelle was born, we discovered tha...

MORE...

MN - Jacqueline Dunlap

News image

The Wednesday before Thanksgiving of 2008 was the day we received a call from our daughter’s Pediatrician tell...

MORE...

FL - Dylan Brain

News image

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (two at that time) Dyla...

MORE...

CO - Sawyer Devlin Ray

News image

Our little man, Sawyer, was officially diagnosed with NF1 when he was 8 months old, though we had been pretty sure of th...

MORE...

UT - Kala Schvaneveldt

News image

My name is Kala Schvaneveldt. I am 16 years old, and when I was 7 years old I was diagnosed with neurofibromatosis type ...

MORE...

OH - Bryce Gossard

News image

Wow, what a great day we had on May 23, 2010 at the Family Fun Day and Car Show on behalf of Bryce in Kenton, Ohio. Ther...

MORE...

AL - James Gerrell

News image

My son James was first diagnosed with NF1 at the age of 4. He has lived with this for the past 24 years. He has had seve...

MORE...

MI - Josiah Abbott

News image

Josiah A.

MORE...

Your are currently browsing this site with Internet Explorer 6 (IE6).

Your current web browser must be updated to version 7 of Internet Explorer (IE7) to take advantage of all of template's capabilities.

Why should I upgrade to Internet Explorer 7? Microsoft has redesigned Internet Explorer from the ground up, with better security, new capabilities, and a whole new interface. Many changes resulted from the feedback of millions of users who tested prerelease versions of the new browser. The most compelling reason to upgrade is the improved security. The Internet of today is not the Internet of five years ago. There are dangers that simply didn't exist back in 2001, when Internet Explorer 6 was released to the world. Internet Explorer 7 makes surfing the web fundamentally safer by offering greater protection against viruses, spyware, and other online risks.

Get free downloads for Internet Explorer 7, including recommended updates as they become available. To download Internet Explorer 7 in the language of your choice, please visit the Internet Explorer 7 worldwide page.