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My son was just recently diagnosed with NF1, for two years we have been trying to figure out what has been going on with him. He has had unexplainable itching attacks on the right side of his head neck and top part of his right arm, we still do not know what is causing these episodes. His doctor finally referred him to Children's Hospital in Seattle after I asked him to, I had had enough of not knowing what was going on with him. I am a single mother of three and his brother and younger sister do not understand what is going on with their brother but I am trying to help them as well as try to figure out how to help him with this condition and his other unexplainable condition his father is involved in his life as well he sees him every week.
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