NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neurological disorder that causes tumors to grow on the nerves of my brain & spinal cord .I am a regular kid in honor classes and always on High Honor Roll. I love science :)I love volunteering to help developmentally disabled kids in their special basketball & baseball programs and also in Best Buddies Club. NF just keeps interupting my life !!! In 2008 I had a meningioma tumor removed from my spinal cord and in 2009 I had 3 brain surgeries in one week to remove a brain tumor, blood clot and insert a vp shunt.For the past 12 months I have been in a clinical drug trial hoping to do my part in finding a treatment for NF and hopefully one day soon a cure for myself and all the people who suffer from NF.I have to go to the doctor in NYC once or twice a month for bloodwork, checkup and meds .Every 3 months I get a 2 hour MRI of my brain & spinal cord,to monitor the tumors that I still have - and an eccocardiogram and audiogram. We NEED to find a cure and research medications to stop these tumors from growing REALLY SOON . I have BIG plans and dreams and I will NOT let NF2 stop me from doing what I want to do. So PLEASE contribute whatever you can to help NF research .All money donated goes directly to The Childrens Tumor Foundation to be used for research to find treatments and hopefully a cure for NF. Me and my family REALLY appreciate it alot. Thank You so much:) Making offline donations: All check donations should be made payable to CTF. When mailing your check please write in the memo 'Bailey Gribben R4R 2012' . Please mail check to: Children's Tumor Foundation, Racing4Research 2012, 95 Pine Street, 16th Floor, New York, NY 10005. The Children's Tumor Foundation is a 501(c)(3) organization. For more information about neurofibromatosis and racing 4 research, please visit the CTF website www.ctf.org Neurofibromatosis 2 (NF2): also known as Bilateral Acoustic NF (BAN), is much rarer than NF1, occurring in 1:25,000 births. NF2 is characterized by multiple tumors on the cranial and spinal nerves, and by other lesions of the brain and spinal cord. Tumors affecting both of the auditory nerves are the hallmark.

DONATE TO BAILEY

Meet Our R4R NF Heroes

  • 1
  • 2
  • 3
PrevNext

CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

Read more

AK - Holly Beeman

AK - Holly Beeman

Holly, is the first in our family with NF1.  The first time our family heard of Neurofibromat...

Read more

MA - Dylan Thompson

MA - Dylan Thompson

Dylan is 10 years old and has neurofibromatosis. He has suffered significant visual losses such as b...

Read more

GA - Jocelyn Driscoll

GA - Jocelyn Driscoll

Hi my name is Jocelyn Driscoll. I was diagnosed with Neurofibromatosis Type 1 at age 3. Neurofibroma...

Read more

IN - Jesse Markland

IN - Jesse Markland

Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-l...

Read more

NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

Read more

VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He ha...

Read more

CA - Blake Robinson

CA - Blake Robinson

For the first year of his life, everything seemed normal. Blake was born at term via c-section, only...

Read more

IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café...

Read more

MO - Nicole Riley

MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthda...

Read more

MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

Read more

FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

Read more

UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects...

Read more

NY - Bailey Gribben

NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neu...

Read more

MI - Nicolas Cohoon

MI - Nicolas Cohoon

When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were...

Read more

GA - Jack Burke

GA - Jack Burke

Jack is a kind, energetic, inquisitive, adorable 8-year-old who also has NF. He is a fantastic big b...

Read more

FL - Lilly Ann Brooks

FL - Lilly Ann Brooks

Thank you for supporting the Children's Tumor Foundation. Your contribution is greatly appreciated...

Read more

GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call...

Read more

 

PPMlogoC360R-Championship-Sportscar-Team-on-whiteBRM-Chronographes-Logo  2015 Horizontal Lock4ADF77

FatheadOhio Valley Region PCA  Wireless ZoneSt. Louis Region PCAoakley

 

Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org