NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not just with a cold or the flu. Those are managable with some warm soup and lots of TLC. No, this illness is unfamiliar and one that has no cure. Neurofibromatosis(NF), was not in our vocabulary until March 2009. Our hero Ethan was 5 years old. As a family, we have embraced Ethan's NF, without hesitation. We read what we can and talk to Ethan about what is going on in his life. His sisters each have braclets that they wear and can tell others about their big brother. Ethan is our NF Hero and we hope that he can be yours too. He takes this disorder in stride, it does not and will not define who he is or who he will become. It is because of his NF that Ethan has the determination to push harder and go faster. We feel blessed and count our blessings each day. There are countless others who struggle each day because of NF's affects. Children who have already undergone multiple surgeries to remove debilitating tumors. Adults who have just learned of this disorder for the first time and need assurance and guidance in dealing with all its affects. Please consider donating to this wonderful cause. All funds raised go toward research. Research in critical in finding a CURE. Thank you so much!

DONATE TO ETHAN

Meet Our R4R NF Heroes

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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CA - Brandon Tibbets

CA - Brandon Tibbets

Brandon Tibbets was born with NF 1. He has a bone deformity in his leg due to his NF. His bone fract...

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GA - Delaney Watts

GA - Delaney Watts

I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you w...

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PA - Michael Zazula

PA - Michael Zazula

Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of ...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They we...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

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MA - Dylan Thompson

MA - Dylan Thompson

Dylan is 10 years old and has neurofibromatosis. He has suffered significant visual losses such as b...

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IL - Tyler Neppl

IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumo...

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CA - Denelle Pritchard

CA - Denelle Pritchard

My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since...

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MA - Molly McBryan

MA - Molly McBryan

Molly was diagnosed with NF1 at 18 months. Doctors have found a tumor on Molly's optic nerve, a si...

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CA - Andrew Vigil

CA - Andrew Vigil

Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and...

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IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café...

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Manny Evans

Manny Evans

"My name is Emmanuel Evans but I go by Manny. I was diagnosed with NF1 when I was six months old. I ...

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FL - Lilly Ann Brooks

FL - Lilly Ann Brooks

Thank you for supporting the Children's Tumor Foundation. Your contribution is greatly appreciated...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. S...

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Contact Us

Children's Tumor Foundation
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New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org