NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not just with a cold or the flu. Those are managable with some warm soup and lots of TLC. No, this illness is unfamiliar and one that has no cure. Neurofibromatosis(NF), was not in our vocabulary until March 2009. Our hero Ethan was 5 years old. As a family, we have embraced Ethan's NF, without hesitation. We read what we can and talk to Ethan about what is going on in his life. His sisters each have braclets that they wear and can tell others about their big brother. Ethan is our NF Hero and we hope that he can be yours too. He takes this disorder in stride, it does not and will not define who he is or who he will become. It is because of his NF that Ethan has the determination to push harder and go faster. We feel blessed and count our blessings each day. There are countless others who struggle each day because of NF's affects. Children who have already undergone multiple surgeries to remove debilitating tumors. Adults who have just learned of this disorder for the first time and need assurance and guidance in dealing with all its affects. Please consider donating to this wonderful cause. All funds raised go toward research. Research in critical in finding a CURE. Thank you so much!

DONATE TO ETHAN

Meet Our R4R NF Heroes

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CA - Madison Branaugh

CA - Madison Branaugh

Neurofibromatosis is no fun. I am so thankful of your support to help us find the cure. I cannot exp...

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GA - Jack Burke

GA - Jack Burke

Jack is a kind, energetic, inquisitive, adorable 8-year-old who also has NF. He is a fantastic big b...

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PA - Michael Zazula

PA - Michael Zazula

Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of ...

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FL - Lilly Ann Brooks

FL - Lilly Ann Brooks

Thank you for supporting the Children's Tumor Foundation. Your contribution is greatly appreciated...

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VA - Evan Perdew

VA - Evan Perdew

Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neuro...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects...

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CA - Brenda McCool

CA - Brenda McCool

Join Brenda Paola McCool in her quest to find a cure for neurofibromatosis (NF). All donations wil...

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MA - Dylan Thompson

MA - Dylan Thompson

Dylan is 10 years old and has neurofibromatosis. He has suffered significant visual losses such as b...

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MA - Molly McBryan

MA - Molly McBryan

Molly was diagnosed with NF1 at 18 months. Doctors have found a tumor on Molly's optic nerve, a si...

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Manny Evans

Manny Evans

"My name is Emmanuel Evans but I go by Manny. I was diagnosed with NF1 when I was six months old. I ...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anyt...

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IN - Jesse Markland

IN - Jesse Markland

Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-l...

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CA - Denelle Pritchard

CA - Denelle Pritchard

My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech...

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GA - Katherine Thompson

GA - Katherine Thompson

I want to thank everyone for visiting this site to become more educated regarding neurofibromatos...

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VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He ha...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. S...

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