NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not just with a cold or the flu. Those are managable with some warm soup and lots of TLC. No, this illness is unfamiliar and one that has no cure. Neurofibromatosis(NF), was not in our vocabulary until March 2009. Our hero Ethan was 5 years old. As a family, we have embraced Ethan's NF, without hesitation. We read what we can and talk to Ethan about what is going on in his life. His sisters each have braclets that they wear and can tell others about their big brother. Ethan is our NF Hero and we hope that he can be yours too. He takes this disorder in stride, it does not and will not define who he is or who he will become. It is because of his NF that Ethan has the determination to push harder and go faster. We feel blessed and count our blessings each day. There are countless others who struggle each day because of NF's affects. Children who have already undergone multiple surgeries to remove debilitating tumors. Adults who have just learned of this disorder for the first time and need assurance and guidance in dealing with all its affects. Please consider donating to this wonderful cause. All funds raised go toward research. Research in critical in finding a CURE. Thank you so much!

DONATE TO ETHAN

Meet Our R4R NF Heroes

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MA - Molly McBryan

MA - Molly McBryan

Molly was diagnosed with NF1 at 18 months. Doctors have found a tumor on Molly's optic nerve, a si...

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GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call...

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GA - Jocelyn Driscoll

GA - Jocelyn Driscoll

Hi my name is Jocelyn Driscoll. I was diagnosed with Neurofibromatosis Type 1 at age 3. Neurofibroma...

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GA - Katherine Thompson

GA - Katherine Thompson

I want to thank everyone for visiting this site to become more educated regarding neurofibromatos...

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (tw...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your chil...

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VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He ha...

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SC - Nicholas Biering

SC - Nicholas Biering

If you are reading this page, you probably already know who I am, but just in case…. My n...

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UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects...

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AZ - Kyle Oden

AZ - Kyle Oden

Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thou...

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NY - Julia Perfetti

NY - Julia Perfetti

Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. J...

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IL - Tyler Neppl

IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumo...

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NY - Kevin Martin

NY - Kevin Martin

My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lai...

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AK - Holly Beeman

AK - Holly Beeman

Holly, is the first in our family with NF1.  The first time our family heard of Neurofibromat...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They we...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. S...

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CA - Blake Robinson

CA - Blake Robinson

For the first year of his life, everything seemed normal. Blake was born at term via c-section, only...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with lif...

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Children's Tumor Foundation
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Phone: 212-344-6633

info@ctf.org