More NFE Heroes
Erin EarleErin was diagnosed with neurofibromatosis type 2 (NF2) sixteen years ago and has dealt with many changes as a ... READMORE |
Mavia Evenson Mavia was diagnosed with NF 1 when she was just a few months old. She is now four years old and is a lively and fun loving little girl. "No matter her struggles, she doesn't let anything keep her down," said Karrie Evenson, Mavia's mother. "She is a fighter and she makes me stronger." Presently Mavia attends a special school during the day that provides her with therapies to help her developmentally. Mavia struggles with learning disabilities and low muscle tone, wh... READMORE |
Noah Tyrybon At Noah’s kindergarten graduation, when the kids were asked what they want to be when they grow up, Noah, among all the policemen, firefighters, and teachers was the lone "calculator.” The now six-year-old Noah is excited about starting first grade this fall. He enjoys bowling, baseball and golf. Noah was diagnosed with NF1 just before his first birthday, exhibiting café-au-lait spots and axillary freckling. “Since then, we've never noticed any other detrimental effects from the disorder,” said Frank Tyrybon, Noah’s dad. “We visi... READMORE |
Braeden and Bronson Steiner Braeden and Bronson Steiner both have NF1.Braedan was diagnosed at 16 months with an optic glioma brain tumor. At about two years old, he was diagnosed with congenital pseudoarthrosis of the tibia as well. He has been wearing glasses and a leg brace since an early age.Braeden underwent 60 weeks of chemotherapy from 2006 to 2007. He began another long chemotherapy regimen in October 2010.Despite all Braeden has been through, he is a very happy and intelligent boy ... READMORE |